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Follow up trials,

Boomersdad
Posts: 25
Joined: Jan 2012

Ive been posting since I had my grade 3 Big C and full left kidney removed 7/01/2012 and doing ok I think, But is there any body else out there who have been asked to take part in research trials, the doctors says it could last for a few years,is there any danger of it agrevating things.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Erroll, can I ask you what they have asked you to join in? I live in Scotland (though I'm a Londoner) and I'm interested in all clinical trials going on in the UK re kidney cancer. Good luck on Thursday which happens to be when I'm also having my first follow-up.

foxhd's picture
foxhd
Posts: 2015
Joined: Oct 2011

There are many clinical trials out there. All to promote research into curing cancer. Obviously some are better than others. I've been surprised to find that most people do not enter a trial. They opt for currently acceptable treatments. I was offered a trial of pazobinib back in the spring. I did not see any benefit to me in that study. Plus it would have been a big time, and travel committment. This fall, I entered a study of MDX-1106 which I am absolutely trilled about. More importantly, had I jumped on the first trial, I may not have been eligible for this current study. Pure good fortune...So..at least in the United States there is an internet listing of current clinical trials and which ones are accepting new clients. If you have something similar in the UK, do your research. Find out what is right for you. Don't just accept what is offered.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Agreed absolutely Fox. I've done that, even though I seem to be doing fine so far in recovery (off for another 18 holes in 40 minutes time) and I'll be seeking a definitive statement of the latest position tomorrow - not smart to take your eye off the ball and get too complacent with this sneaky disease.

I hope Erroll tries to find out a bit more before he makes a decision. By the way, the position in the UK NHS is different as between England and Wales and Scotland. The issue of Scottish independence is as fascinating as the battle between Romney and Gingrich but the already devolved medical issues have occasioned a disparity of provision of both drugs and trials between our jurisdictions.

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