Jan 25, 2012 - 11:34 pm
Yesterday I met with my Onc with a large group of my family and girlfriend. It was time for the doc to outline my options after my hospital stay and scans.
Long story short, we decided that since everything we have tried against the C has failed, how miserable the side effects were making me, and in light of my bowel perforation(s)we were going to stop doing chemo and I was going to enter a more palliative phase. I will still get antibacterials and antifungals and get my belly drained as needed, but no more chemo, a lot fewer pills and increased pain meds.
I am at my sisters place now and will probably move to a first floor condo next week very near my mom. My family will take shifts caring for me. They have been beyond great as has been my girlfriend. I am very skinny and weak and but have "Elephant Man" feet, ankles and legs. All-in-all though I am much more comfortable and don't miss continuously throwing up one bit. We have a bunch of us going to the Borgata this Sunday so I can get my gambling fix in :-p i am tending to a lot of details this week to free up time for later.
So, it's prolly weeks or months instead of months or years for me. I hope to make the most of clearing out the chemo drugs and enjoy the good times as long as they last. This may be the last update you get from me, but I have left instructions for someone to update you guys when I go.
Please don't be sad. I'm not. I got my head around this a long time ago. I find it's harder on my family and friends than me. Sorry for the typos, I'm pretty pilled up. I love you all and wish you all the very best in your battles. I have rejoiced in people's gains, mourned at their losses and learned a lot here.
All the best!