Jan 24, 2012 - 2:58 pm
It's a very long story, but I am now taking care of my father who is in the terminal stage of Head and Neck cancer. He's about to be released from oncology and we had our first appointment with the palliative doctor last Thursday and he was no help. My dad hasn't been eating for some time, he gets his nutrition though a feeding tube, so he is very thin. under his chin and his cheeks are starting to swell along with his tonsil area, which is where his initial cancer was found. He has started bleeding from his nose and trach tube recently, and the palliative doctor said this is all normal with him so close to death, and thats about all that doctor told me. His pain is managed as of right now, though he has a constant headache that seems to bother him more that his throat. I just want to know what all to expect, I've been reading some things online but they scare the hell outta me. He refuses to have hospice come in and help, so I am his sole caretaker, when he was diagnosed a year ago his wonderful wife went through his retirement money in two months and took off to Austin, that was in june and he's been with me ever since. Please if anyone knows what I should expect in these last days, just so I'm not too freaked out when it happens, he goes back to his oncologist on the 30th, where my father wants to be referred to another palliative doctor because he DID NOT like the one we just saw, so who knows how long its going to take for that appointment so I can get some real information. Thank you so much.