good news I think CT SCAN clear no mets and latest CEA down 1 from 17 to 16 Yippeee!!!!!!!!

so i am hammering our health system here.
9 am intravenous iv c and i get the cea and full bloods results from last friday.

now my cea is down to 16 from 17 over the period of a week while i was away on holidays.
note for 3 days of that period i did iv c 60,000 ui and artemisinin.

nothing conclusive but still better than a doubling. maybe just maybe the alternatives are working. i have hit them very dam hard if i say so myself.

will wait and note cea over the next month at weekly intervals. going to continue iv c and artemisinin and the other supplements i am doing.

then i do the low dose triple phase ct at 12 noon of chest , abdo, pelvis. No mets found. so unless its in the brain , i am met free on another scan at least. this is great i think! this is the only low dose ct scanner in sydney 8 msev, which is about half what i used to get exposed to.

so then at 4pm with results i see top onc for 3rd opinion, with my box of well organised records. its the most detailed and intensive 90 minute consult. we went over all the regime, the history and the plan. i made a couple of pages of notes.

as my main onc is not back until 23 jan, i have used my time well. i have learned so much.

onc 3 is taking my case to the radiologists review meeting, i bit of liquid on the liver and a small cyst. he also wants me to see surgeon for another scope asap. i said funny i am seeing him tomorrow 8.30am.

since the 21november11 the day the recurrence became a distinct possibility, i have generated 3 folders of research and records.

i will use both onc's , i like the focus, onc 3 wants to see me in 2 weeks after the scope and more tests,, to see how i go.

he focus's on colorectal big time, was apart of the cimetidine pilot study, likes it, he likes psk, and does not like iv c, does not like rgcc molecular.

onc 3 is a great resource. out of pocket $60 for the best 90 minutes so far.

so tomorrow 8.30 surgeon in the city.
11.30 am liver ultrasound.
2.15 redo live blood and clot report analysis.

somewhewre in between i need 2 hours for iv c.

being healthy and focused is geting the respect of the onc's.

the scans, the reports, the bloods, the supplements. everything is documented at my finger tips. i feel confident know one else has approach these onc's in such a patient focused determined manner. if my crazy alternative regime works, i will have dragged reluctantly three top sydney onc along for the cea ride. i just hope it does, if not the fall back is whatever the onc's determine.

to some extent i am an expert on me, my physiology. this is an area where we can bring clarity to the discussions. onc 3 was very very interested in my bm's, I may have inflamatory bowle disease, which i just found out my mother has. it was onc 3 questioning that helped me piece this part of the puzzle together.

just an update, still got 2 juices in today and healthy food.

hugs,
Pete

ps given my health, i am almost on the point of insisting on chemo to kill any met. the clinical argument is the cea rise may not be a tumour and you would suffer chemo side effects for no benefit. given my health and age i almost consider doing chemo as an aggressive move, even before any mets have landed. i will pursue somewhat non conventional aggressive line with all the onc's. so yes here is an alternative junkie insisting on the most effective chemo. ironically this is what the german clinics are advocating as well.

this is really just like stage 3 adjuvantant chemo, watchful waiting misses the window. i wonder if clincial studies have been done with regard to this strategy for crc's whose cea has just started to rise.