Jan 16, 2012 - 8:38 am
Antiquiimom and Surviormannc have both posted about speech deficits. Our son (age 34, dx AA3, 4-13-11, inoperable) also is dealing with this, among other deficits (gross and fine motor). His tumors are located in the cerebellum. I think that the speech impairment is the hardest to deal with as it is very isolating for him. Most of the time, we can understand him. But often times, we have to ask him to repeat himself, and he gets very frustrated that we can't understand what he's saying. And for those not around him 24/7, they have an even harder time understanding what he says, which makes them uncomfortable. You can see it in their body language...looking away, appearing impatient like they want to get away, or just simply nodding their heads like they understand. The result is that other than a friendly hello, they don't engage him a conversation. Can't really blame them...before this happened to us, I would have probably acted the same.
The result is that I think our son decides just to shut down, and isloate more.
Cognitively, he is still pretty sharp, albeit slower to process information, like SurvivormanNC has described.
He was in speech therapy for a while, which I think helped some. Also, the Speech therapist said a good exercise is for him to look at a picture, and describe what's going on in the picture.
Brain cancer is its own beast...not like other cancers. Somedays I wonder how we can go on. But then a sunny day comes along, and I know there is hope for better days.
Hugs and prayers for all of us going through this.