I apologize for not checking in once in a while but my son has gotten worse. We're in the hospital now, he was ambulanced in Tuesday evening after 7 hours of chemo up here. The infusion department of the hospital closes at 7:30pm and everyone but one nurse had left and then my son became dizzy, nauseous and chilled. The nurse called for a doctor to check him out from the "In-patient" wing and after looking him over sent us home as he had no fever. I put him to bed and an hour later he awoke with a 103 fever so I had him ambulanced to the ER as I'm still weak from my cancer ordeal and wouldn't be able to pick him up if he fell while trying to get him back in the car.
Yesterday, I learned that there is a very small group of kids (1%) that at the DNA level, cannot tolerate chemotherapy and my son is in that group.
As of a result, he can never have a bone marrow transplant or a liver transplant. The chemo that he has already received has now affected his heart, bladder and the worst so far is that he has developed neuropathy in his spinal cord and all the nerves leaving his spine causing horribly severe pain that they are having difficulty controlling with pain medications due to their negative effect on other organs. His prognosis is now terminal, but they can't give me a clear indication of how much time he has left. Due to his severe anxiety attack issues, we have all agreed that telling him of this news would do more harm to him physically and mentally. I could really use some prayers as trying to keep a positive face is becoming very difficult. For those of you that are aware of the mental and physical abuse that he and his sister went through before getting custody of them, you know he plays a lot of the online military war games to help him focus away from pain and anxiety. Yesterday he asked me if there will ever be a day that he could learn to shoot a real gun, specifically one with a sniper scope (his favorite gun of choice in the games) and I said I hoped so. I made several calls and was finally directed to a nearby Sheriff's indoor shooting range that is open to the public most of the week days but closes for two days just for law enforcement officers. After speaking to the head officer that manages the shooting range he told me that they are going to have my son brought in on a day that's just for officers, set up a low caliber sniper rifle with a scope! When I told my son about what was going to happen he started crying and giving me "high fives" all throughout the rest of the day. I was so impressed with the officer's awesome attitude and how quickly this officer got several other officers there on board with this endeavor
I want to thank you all from the bottom of my heart for not only supporting me throughout my ordeals with cancer but for your never ending compassion and support you have poured out for my children.