Jan 08, 2012 - 11:01 am
My name is Kyla and the last 3 weeks of my life have felt like intolerable cruelty. The only thing that got me to today was God and praying. On 1 November my neck swelled and I got DVT's in both my major veins. Had a operation on 3 November to try open the blood flow to my right arm and was off home going on a cruise with my family to Mozambique. Little did I know that would be the last time I would feel "normal". Almost as I stepped off the cruise liner, my life changed forever and will never be the same again. I guess that is not always a bad thing but anyway.
On the 19 December I rushed to the ER as my neck had now started swelling outwards and I thought I was bleeding due to the DVT's. A CAT scan and a few hours later and the diagnosis was Lymphoma or some other cancer as there was a mass around my neck and going down into my chest.
Had a terrible Christmas day, almost in a fog, where I was shaking and trembling and trying to eat at a restuarant my Dad had booked for us so that my mom didnt have to cook. I could barley stand as I still did not know what was going on. As the ER doctor told me = this is a terrible time to get sick.
So.... after being told I could be operated on on the 9th January I took matters into my own hands and called my dads doctor - as he had just gone through Leukemia - and she told me to bring all the stuff to her immediately. She booked me for a biopsy the following day.
I then waited a week - again so scary and so unsure of what was happening. Was it thyroid cancer, thymus cancer, Lymphoma or something else? Then I was told the doctor had my results could I come see him. That was 3 days ago and he confirmed I have Hodgkins Lymphoma Nodular Sclerosis.
I was in the hospital on Friday to get a port put in and am waiting to hear when the Chemo will start. He said he is going to use BEACOPP - standard baseline. I am not even sure what that means. I just know that I am a mommy, just had a beautiful baby boy, Declan who is now 6 months old and another little man Keagan who is turning 4 and I am so so scared.
I believe in God and in Jesus and the Holy Spirit and I do believe things happen for a reason, but my mind goes mad on me and I start getting thoughts of what it will be like in the end, and then I have to get myself out of it and think positive!