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Life and exercise after RCHOP

hijenist's picture
Posts: 6
Joined: Jan 2012

After 6 rounds of RCHOP for Large B Cell Mediastinal Lymphoma, my oncologist said I was in remission. It has been three months since, and although my energy is returning I still don't feel 100% It seems like everyone around me expects me to be completely back to normal! One of my issues is that I am in the Air National Guard, and they want me to complete my fitness test of 1.5 mile run, timed push ups and sit ups. I tried to tell them it has only been three months, and they don't seem to get it. If you have gone through this therapy, can you tell me how long it took to get back to a regular exercise routine? It is everything I can do just to work and take care of my 7 and 9 year olds. My last blood count shows my WBC at 2.5 which the doctor doesn't seem to worried about. Thanks for any responses!

vinny59's picture
Posts: 1032
Joined: Nov 2006

Hi, I have been out of treatment for a year now, and my energy level is about half of what it was. It's so frustrating that people don't understand that you are not your old self. My WBC are at the same levels as yours and my Onc. doesn't seem to worried about that too. They way it was put to me is, they wiped out all my cell's during treatment, believe it or not I had no WBC and RBC by my 5Th treatment, I was almost was forced into the hospital. Everyone is different, get your Doctor involved with explaining your energy levels to the National Guard, have them reschedule till your ready....... Good Luck and stay well! Vinny

allmost60's picture
Posts: 3184
Joined: Jul 2010

I am also a year out from my last chemo treatment and my energy level isn't half what it use to be. Maybe my Rituxan maint every other month is keeping my energy slow from bouncing back, but others here that have done the R maint seem to be doing wayyy better than me. My blood counts are good, but between the achey sore joints and fatigue exercising is next to impossible. Babysitting Lizzy 3 days a week(10 hours a day) is all I can muster. Thank goodness she's such a joy instead of a hardship. She's my pain pill for everything! Take care guys....hopefully in time our energy will start to slowly pick up.
Love to all...Sue (FNHL-2-3A-6/10)

COBRA666's picture
Posts: 2418
Joined: May 2010

I am a little more than a year out of chemo. I have noticed that after my Rituxan maintenance every 6 months my energy really drops for a couple of months. Then it starts to come back,but never reaches 100%. Then its time for another R treatment and it starts all over again. John

Posts: 4
Joined: Jan 2012

Hi there! I'm sorry but that is total bs that they want you to take a pt test! I was in the army for 10 years and my husband is still in and I know for a fact that they would give active duty members a longer time to recover. You should get a letter from your doc and go on a medical profile! Anyway, I have been in recovery for almost a year now and my energy level isn't even close to what it used to be. I,too, have a 7 & 9 year old and they can be exhausting. On the days that I do work I come home and can't do much for the rest of the night. It's very frustrating b/c I was a competitive athlete prior to my diagnosis and always had a ton of energy. I do exercise almost everyday now but it's not at the intensity it used to be at. Well, good luck.
Becky :)

Posts: 28
Joined: Mar 2011

Hi There,

I had the same diagnosis as you, but did the R-EPOCH treatment instead - also 6 rounds. I think both use similar drugs. I completed my treatment last May (2011) and had some additional radiation through the summer months. I would say I have made significant progress in regaining my strength and stamina. I can do a full 30 min. workout at my target heart rate, and I would dare say I have more core strength now than I did before treatment (but I've been working on it). I probably don't have quite as much arm and leg strength as I did pre-treatment, but I have been intentionally focusing more on my core since treatment so that stands to reason. Almost all side-effects are gone, except a bit of numbness in my toes that continues to subside.

It has definitely been work...and would say it has taken me a good 7-8 months to get to where I am now. At 3 months I was definitely NOT 100% and can't imagine that anyone would be!

Hope that helps.
- Susan

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