It's gonna be a very long weekend :(

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missrenee
missrenee Member Posts: 2,136 Member
Just spoke with my nurse at the onc. office. They got the reports on my bone scan, 3-D imaging and CT scan. The tests showed an "abnormality which could represent metastasis" but the nurse said the onc. would probably want to do a bone biopsy. Apparently, none of the reports are definitive one way or the other.

However--here's the kicker--my onc. left this morning for a wedding out of town this weekend! So, I am in total limbo (no, make that hell) until Monday. At this point I don't know whether to laugh or cry, but I feel like crying.

Hugs, Renee
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  • MAJW
    MAJW Member Posts: 2,510 Member
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    Waiting..
    As we all know, waiting is just hell! No need to sugar coat it! Actually, I'm rather surprised the nurse gave you any info on the test results...when I worked in medicine I wasn't permitted to give out that type of info....anyway, keep in mind that the report said " COULD " ....and " PROBABLY " ....it's not set in stone....but we all understand the waiting game and the stress it causes. If you have any anti anxiety meds, take them!

    Know that I, along with all our " sisters " are waiting along with you...we truly care...
    Big hugs, Nancy
  • RE
    RE Member Posts: 4,591 Member
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    GRRRRR!!!!
    Well I suggest you cry then put it aside as best as you can. Keep yourself busy, watch a few funny movies, nothing too serious, read a good book, go out to dinner, go to places that bring you joy in an attempt to push that gloom aside. I will be praying that this is just a false alarm and that you are A-OK. Keep your chin up and vent when you need too, we are here for you no matter what!

    Hugs,

    RE
  • Jean 0609
    Jean 0609 Member Posts: 2,462
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    OH Renee,
    I am just reading your posts. Go ahead and have a good cry, it might make you feel better. Sorry to hear this. I wished there was something I could do for you, or wished that I was closer so that I could give you a big hug and we could cry together. Love you!
  • roseann4
    roseann4 Member Posts: 992 Member
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    Jean 0609 said:

    OH Renee,
    I am just reading your posts. Go ahead and have a good cry, it might make you feel better. Sorry to hear this. I wished there was something I could do for you, or wished that I was closer so that I could give you a big hug and we could cry together. Love you!

    Oh, Renee
    That nurse should have said nothing! You would still worry but her comments made it worse. Remember she is not the doctor. I once was told by a nurse that my cholesterol was high but it was because my good cholesterol was high. My bad was low. I'll be sending you hugs all week end.

    Roseann
  • aisling8
    aisling8 Member Posts: 1,627 Member
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    Jean 0609 said:

    OH Renee,
    I am just reading your posts. Go ahead and have a good cry, it might make you feel better. Sorry to hear this. I wished there was something I could do for you, or wished that I was closer so that I could give you a big hug and we could cry together. Love you!

    If I didn't like someone
    that's what I would do to them -- tell them something scary MIGHT be happening then tell them oh, you have to wait to find out for sure. Actually, no I wouldn't. It's too awful and I'm not that mean.

    I'm so very sorry you have to live with these thoughts in your head. You will do the best you can to lurch through the weekend and it will be very hard, I know. I send you my best wishes and a little bottle of patience.

    xoxo
    Victoria
  • linpsu
    linpsu Member Posts: 747
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    So sorry
    Oh, Renee, that was awful for the nurse to say that. I really am feeling so badly that you have to go through the uncertainty for the entire weekend. Sending prayers and hugs your way.
    Hugs, Linda
  • AMomNETN
    AMomNETN Member Posts: 242
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    That Stinks
    Renee,
    I'm so sorry you are having to wait. I agree with the others that she shouldn't have said anything. My DIL could look at my test reports but she wouldn't tell me. I got a little ticked but I know she didn't want to give me that kind of news. Have a good cry then just keep as busy as you can. I'm waiting with you cause I had my annual CT Scan today so I won't hear anything til next week. I'm hoping no news is good news. You know we all understand what you are going through.

    Janie
  • camul
    camul Member Posts: 2,537
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    hopefully you can do something fun to get away from the worry for a while. I guess I am a little different than the others as I would have wanted to know what the results of the scan whether or not the doctor was there and if he is going to do a biopsy the chances of having one today or tomorrow would have been slim to none with the holiday. It sounds like the nurse just read the report to you. I get the reports on line now from my tests and then have to wait until he is in to talk to him anyways. But before I got them online I was a mess waiting for the results of the scan. There there is no ideal way for any of this.

    Now by the time I talk to him, the shock of the report has worn off and I am able to hear what he has to say more clearly.

    Remember it is not cancer until the biopsy says so! My best to you, have a good cry and then try to do something fun.

    Hugs and prayers Renee,
    Carol
  • mom62
    mom62 Member Posts: 604 Member
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    Could
    Renee,

    Please remember the key word is "could", it is not definite. Stay positive. They will have to set up an appointment for a biopsy so it will probably be at least another week before you can get real results. Please try to enjoy the New Year and remember we are here for you. I know waiting is hell, been there done that. Medicine takes time that is one thing I have learned. From the first appointment, to the test dates, to the results dates, it can be one long haul. We are here for you whatever the outcome. Have a drink on New Years Eve and celebrate life.

    Terry
  • waffle8
    waffle8 Member Posts: 234
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    mom62 said:

    Could
    Renee,

    Please remember the key word is "could", it is not definite. Stay positive. They will have to set up an appointment for a biopsy so it will probably be at least another week before you can get real results. Please try to enjoy the New Year and remember we are here for you. I know waiting is hell, been there done that. Medicine takes time that is one thing I have learned. From the first appointment, to the test dates, to the results dates, it can be one long haul. We are here for you whatever the outcome. Have a drink on New Years Eve and celebrate life.

    Terry

    waiting
    Very sorry to hear you are in the waiting holding pattern! Thoughts and prayers are with you !
  • grams2jc
    grams2jc Member Posts: 756
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    Waiting SUCKS!!!!!!!
    Was there no other doc who could talk to you about it? You do exactly what you feel like doing, ONLY. Cry, laugh, dance, bounce off of walls..whatever works for you.

    I am soooo sorry you are going through this, my heart bleeds,

    Jennifer
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
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    aisling8 said:

    If I didn't like someone
    that's what I would do to them -- tell them something scary MIGHT be happening then tell them oh, you have to wait to find out for sure. Actually, no I wouldn't. It's too awful and I'm not that mean.

    I'm so very sorry you have to live with these thoughts in your head. You will do the best you can to lurch through the weekend and it will be very hard, I know. I send you my best wishes and a little bottle of patience.

    xoxo
    Victoria

    Oh no!
    This is non-news of the scarey kind. Wish you could at least know what the next step in getting to the bottom of this will be. I'm afraid you won't hear until Tuesday. Monday is a holiday in most places.

    Have tht good cry. It should help - yeh, right, like something will help you right now. I'll send along hugs and prayers that you make it through this holiday weekend (what choice do you have?) without too much distress and that the news on Monday (or Tuesday) is promising.

    Suzanne
  • VickiSam
    VickiSam Member Posts: 9,079 Member
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    grams2jc said:

    Waiting SUCKS!!!!!!!
    Was there no other doc who could talk to you about it? You do exactly what you feel like doing, ONLY. Cry, laugh, dance, bounce off of walls..whatever works for you.

    I am soooo sorry you are going through this, my heart bleeds,

    Jennifer

    Damn it!!! I hate that you are waiting --!!!
    Prayers .. and do anything to keep you busy, as suggested by Jennifer ... grrrrrrrrrrrr



    Vicki Sam
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
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    :-/
    Hi Renee -- Ok, we understand this is extremely annoying and adds more worry to the situation, but please let's wait and see what happens after the biopsy. There's still a chance it is not c. Although it's super difficult to have peace, until you hear from your Dr., please try to be calmed and think that you will be OK, regardless. We know it's hard to focus and enjoy the New Year weekend with this worry, but you DESERVE the peace and enjoyment. Spend time with family, laugh and think positive, always. I am staying positive for you right now. We will be here for you.

    Sending you a huge hug and love your way...and prayers too.
  • tufi000
    tufi000 Member Posts: 745 Member
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    I'm just saying, after a
    I'm just saying, after a double mast and chemo and rads a bone scan showed necrotic cells in my hip bone and they told me the same thing BUT they asked if I knew of of an injury or other reason and I told them what I thought it might be from. They said we will watch it before we do a bone biopsy and it never changed and that was in 2002!!!! BTW I am STILL on Arimidex with no desire to stop it.
    So...it is good they are being thorough and I hope for the best for you too.
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
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    All I have to add is don't
    All I have to add is don't let the waiting steal your joy! Put on your GRRRRRR and show 'em what's what...I bet you're better at that than I am. I'll put my GRRRRR on with you!

    Hugs,

    Linda
  • New Flower
    New Flower Member Posts: 4,294
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    All I have to add is don't
    All I have to add is don't let the waiting steal your joy! Put on your GRRRRRR and show 'em what's what...I bet you're better at that than I am. I'll put my GRRRRR on with you!

    Hugs,

    Linda

    I am sorry that your doc just left without any conversation with you. Most likely because they have not figure it out. while waiting and uncertainty is suck, please celebrate life and do not forget that you are going to be Grandmother in 2012!
    Year ago in December I was in a lot of pain from Arimidex, I could not even sit on chair for more than 20 min. Bone density test have shown a severe osteoporosis. We changed medications and I am in ongoing treatment of osteoporosis. I do feel better.Tomorrow I am going to see my physical therapist for low back problems. I wish your back problems can be corrected and treated and you will feel better soon.
    P.S
    Arimidex can stimulate fractures, 10 % patients who take this drug are having them.

    Hugs,
    New Flower
  • sea60
    sea60 Member Posts: 2,613
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    I am sorry that your doc just left without any conversation with you. Most likely because they have not figure it out. while waiting and uncertainty is suck, please celebrate life and do not forget that you are going to be Grandmother in 2012!
    Year ago in December I was in a lot of pain from Arimidex, I could not even sit on chair for more than 20 min. Bone density test have shown a severe osteoporosis. We changed medications and I am in ongoing treatment of osteoporosis. I do feel better.Tomorrow I am going to see my physical therapist for low back problems. I wish your back problems can be corrected and treated and you will feel better soon.
    P.S
    Arimidex can stimulate fractures, 10 % patients who take this drug are having them.

    Hugs,
    New Flower

    I'm with New Flower,
    sending my comforting hugs as well. Waiting is the absolute pits! Try and keep busy. Anything to make this weekend go by faster.

    Big Hugs,

    Sylvia
  • carkris
    carkris Member Posts: 4,553 Member
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    sea60 said:

    I'm with New Flower,
    sending my comforting hugs as well. Waiting is the absolute pits! Try and keep busy. Anything to make this weekend go by faster.

    Big Hugs,

    Sylvia

    Ugh the torture that is
    Ugh the torture that is waiting! Hoping we can help you as we are sharing some of the burden of the wait. I think its a good sign that it is inconclusive, better than definately. so i will continue to hope its a false alarm. And Olga knows what she is talking about!
  • Frankie Shannon
    Frankie Shannon Member Posts: 457
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    So sorry you have to wait it
    So sorry you have to wait it seems like that is our lot.Just keep the chard.close and your husband and son even closer and just enjoy each other and hope the weekend goes fast for you hope,strength and courage.Frankie