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Post Surgery and Awaiting Chemotherapy
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Dec 29, 2011 - 3:53 pm
Hello All: I have been redirected to this board. I am reposting when I had put up on the Kidney discussion board so I apologize for the repetition. I would appreciate any suggestions. Hello Everyone: So I had my surgery on November 28th and d/c on December 6th. Open abdominal surgery-8.5 hours. I had transitional cell carcinoma of the right ureter and right kidney. Due to my Lynch Syndrome (Muir Torre Syndrome)and the subsequent potential risk to the other kidney, the surgeon hoped to save the kidney. After repeated biopsies during surgery with no clear margin could be made the decision was made to remove them both. Unfortunately, the tumor growth in the ureter has made it necessary to receive chemotherapy. I have two questions: 1. does anyone here have any experience with the Chemo drugs Gemcitabine and Cisplatin? I would be interested in any thoughts/suggestions. I begin on January 6th. 2. also, does anyone have any recommended abdominal exercises? I have a 15 inch midline incision and will need to strengthen when able. Thanks to all and my thoughts are with all of you! Bill |
Joined: Nov 2010
Hi Bill:
This is Bill responding. I had both Gem and Cisplatin, as well as another chemo med called taxol during Sept., Oct and November 2010 for Bladder Cancer. Previous to the chemo they had removed my bladder and now I have a urostomy. I was staged at 3a with an aggressive tumor. The chemo was for 12 weeks and I tolerated it well. They gave me some anti nausea meds to take at home in the event that I started to get sick. Whenever I felt a little qeeszy, I took the meds and never actually got sick. They also gave me meds intravenously prior to each chemo treatment. I believe the most important thing is to hydrate, hydrate, hydrate before, during and after treatments with the cisplatin. My chemo cycle was 3 weeks, so I actually had 4- 3week cycles.
Sorry to hear you're having the problems you are. I know it's very scarey to say the least. But, in my case in stopped all of my pain and gave me my life back. I wish you well and if there is something specific you want to ask, please don't hesitate.
Take care,
Bill
Joined: Oct 2011
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