Dec 18, 2011 - 8:48 am
Well, our son David (age 34, dx 4-13-11, inoperable AA3) had his MRI last Thursday. This comes after David had completed round 4 of the 5/28 Temodar cycle. The results were not what we had hoped. Dr. C first started out saying right out, there's a new tumor showing up on the scan. It's an elongated shape, just to left of the original one, which has remained the same, not bigger or smaller. He also said there was something on the scan higher up, but it wasn't definitive, could be a holdover from radiation. But, the doc said he's not concerned about that now, he wants to address this new lesion.
This says to me one of two things: either there really hasn't been much advancement in developing new, more effective drugs for treating brain tumors, or that Dr. C is thinking there is really nothing else to offer him.
We did talk about his starting Avastin, but he said he wants to hold off on that, "keep it in the back pocket" to pull out when needed (note that he said WHEN, not IF).
On the other hand, David did live free of brain cancer for 26 years, although not without dealing with some serious long-term effects of having whole-brain radiation at age 8. So, maybe the CCNU can work again?
I think Dr. C is handling David's case with "kid gloves" as when he was on radiation/Temodar, David's neutrophils dropped to critical lows and they were freaking out about that. Right from the start, the docs he first had in Virginia, where he was diagnosed in April and had the surgical biopsy and radiation, said that any treatment wouldn't make his cancer go away, just slow things down.
Clinically, David seems better. He's getting around now with a cane, rather than a walker, and he's more engaged in things he liked to do, like working on his computer and playing video games. So, this new finding is puzzling, and not the least, frightening.
Just wondering, is anyone else been put on CCNU and Procarbezine? How did it go?