Wandering mind!!

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TracieK
TracieK Member Posts: 45
in Ovarian Cancer #1
Hi everyone,
It has been a while since I have posted on this board. It will be 4 years since my stage 3B diagnosis on January 7th, 2012. I just had a stay in the hospital with some abdominal pain and of course they did a CT. I ended up with pancreatitis. My Ca-125 was 11, but the CT showed two soft tissue "nodules" in my pelvis, and some "hypodense lesions" in both kidneys. Needless to say, I am having a hard time not letting my mind get the better of me. I know this is the place to come for encouraging words, and I thank you in advance!!

Many prayers for all of you,
Tracie

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  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #2
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    Of Course
    Your mind is taking you to the worst possible scenerio. That seems to be human nature. If your CA-125 has been a good indicator for you in the past, the fact that it is only 11, with active pancreatitis, should be a good sign. Such a condition would likely raise your CA-125. Has your doctor given you any insight as to what s/he thinks is going on?

    In the meantime, try not to dwell on the CT scan results.
  • carolenk
    carolenk Member Posts: 907 Member
    #3
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    Tethys41 said:

    Of Course
    Your mind is taking you to the worst possible scenerio. That seems to be human nature. If your CA-125 has been a good indicator for you in the past, the fact that it is only 11, with active pancreatitis, should be a good sign. Such a condition would likely raise your CA-125. Has your doctor given you any insight as to what s/he thinks is going on?

    In the meantime, try not to dwell on the CT scan results.

    PET/CT scan needed
    You aren't going to know what going on until you get a PET/CT scan...I don't know why you are supposed to sit on these results without going to the next level which would tell you whether the nodules/lesions are cancer or not. You can be sure if you were the doctor's wife, you would be getting that PET/CT ASAP. I would be on the phone asking when the PET/CT scan was scheduled.

    Sorry, if I sound irritated but it really bothers me that so many survivors are treated like you are--and it is all about whether or not the insurance company wants to pay for the test...UGH!
  • TracieK
    TracieK Member Posts: 45
    #4
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    Thursday is the day!!
    I will be seeing the gyne-onc on Thursday. She has already said biopsies are necessary since the "nodules" are seen on CT. I will be taking my reports and CT disc with me to the visit. Saturday the 7th will be 4 years since diagnosis of stage 3B ovca. And I made it through all 6 rounds of peritoneal chemo, after surgery. I will be celebrating that for sure. I know a positive attitude is the most important part of this journey. Sometimes the focus just gets a bit muddled.
    Thanks for the responses!

    Prayers,
    Tracie
  • LaundryQueen
    LaundryQueen Member Posts: 676
    #5
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    TracieK said:

    Thursday is the day!!
    I will be seeing the gyne-onc on Thursday. She has already said biopsies are necessary since the "nodules" are seen on CT. I will be taking my reports and CT disc with me to the visit. Saturday the 7th will be 4 years since diagnosis of stage 3B ovca. And I made it through all 6 rounds of peritoneal chemo, after surgery. I will be celebrating that for sure. I know a positive attitude is the most important part of this journey. Sometimes the focus just gets a bit muddled.
    Thanks for the responses!

    Prayers,
    Tracie

    Tracie: it sounds like you
    Tracie: it sounds like you are a good candidate for "second look surgery" since you has a long remission (well, long by ovarian cancer standards).

    Why do a biopsy instead of a PET scan? Is it because of the pancreatitis? I would want a PET scan then surgery to remove the nodules if they were malignant--which I pray are not.

    Please keep us updated on your story.

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