Survivor Septic Shock,complete organ failure,fungal infection, resulted from a doctor accidentally puncturing my intestines during surgery. My family says I was swollen like a balloon, I remember my hands and feet peeling so bad & my hair falling out from daily CTs.
I had surgery on Dec 17,2008 to remove my kidney for what we were told, was advanced stage kidney cancer. We now find my Dr records show only renal mass, presumed TCC of the kidney, and not a single biopsy done before or during surgery that confirms any cancer, and my family was told immediately after surgery I was Cancer free. Then just the other day after the 12th request for ALL medical records(don't understand why this is such a struggle). We again, find even more disturbing information. I never saw any oncologist,that my PCP & Urologist clearly told us I was seeing, only (PCP,Urologist,Radiology)and now we are finding information that just turned up in my latest records request showing an Ultrasound I had on 11/11/2008 clearly indicates NO left or right renal mass, and a urine cytology shows negative for cancer cells another traumatic story, so I will stop and discuss the septic shock trauma from this surgery.
12/17/2008, during surgery for Left Laparoscopic nephroureterectomy,left aortic and interaortocaval lymph node dissection, right iliac and obturator lymph node dissection my intestine was accidently punctured.
12/17/2008 - 12/19/2008, I laid in a hospital in terrible pain for 2 days begging for help and was told by nurses & doctors I was being a baby and they just gave me more pain meds. I also find out no blood work had been done except Hct & Hgb and they were both Low and my urine output was very very low, maybe something that could have been a clue for the future, how about total blood work after a major surgery.
On 12/19/2008, the last thing I really remember for many, many months was looking into the eyes of my husband and telling him I was dying. He rushed to get help and General surgery stepped in and rushed me to emergency surgery, I was in Septic Shock. I spent 20 days on life support in ICU and survived only to be discharged quickly on 1/16/2009 with tubes and open wounds and the doctors & hospitals knowledge that I had another huge 9 cm abscess in the left flank that they couldn't reach through the abdominal incision, Major respiratory issues, etc. Well of course my husband had to rush me back on 1/21/2009 and then more drains added until they finally they did a flank surgery on 1/23/2009. I also had over the course of my treatment many blood transfusions, mixups in my treatment orders and various other traumatic events. Well,I finally left the hospital early March 2009, and had home health & my husband nurse my wounds at home for months, until all drainage tubes,wound vacs and open wounds healed in late July 2009. Since I am a strong willed person & a fighter that has never let anything get me down,(but this trauma),I fought my way out of the bed, wheelchair, walker, and was told by my doctors to walk,walk,walk. Only to find out around Sept/Oct 2009, that the additional pain I was now noticing was my abdominal wall tearing in the lower pelvic area, because of the infection, then the next month they found 2 more inguinal and ?? in my upper abdomen. My doctor didn't feel I was physically or mentally ready for another major surgery to repair them until after the 2009 holiday, but then the problems started as I was out of work for a year and lost my job and insurance. So there went my multiple hernia repair surgeries, and all care, since I could not pay cash. I think that was the point I started wanting to know more about all that had happened to me, I was then told I had to ask questions through their risk manager and was never able to talk to any of my doctors. I was sent numerous letter asking me to quit asking questions & that as of 4/30/2010 I needed to find new doctors, and I didn't even understand all that had happened to me to be able to explain to a new doctor. My PCP basically acted ignorant to all that had happened to me and never referred me to any needed services, for R lower lung paralysis, asperating from being intubated twice,etc. Blood issues,etc.
Yes, I thank God everyday that I survived Septic Shock, so I can be here with my husband, children and grandchildren, I just wish I could get completely well and feel better and have my life back.
So much for life after Surviving Septic Shock, I really do try to stay Positive and Hopeful, but that doesn't seem to be working very well, somedays. I just want to be healthy again and able to LIVE my life.
Thank You, for listening