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Joanne - how are you?

lizdeli's picture
lizdeli
Posts: 522
Joined: Jul 2009

I've been thinking of you Joanne and hoping and praying that all is well with you. You founded this site and we are all so grateful to you. If you have a chance let us know how you are doing. Miss you.
Hope all is well
Hugs,
Liz

mp327's picture
mp327
Posts: 3109
Joined: Jan 2010

You have been on my mind also. I hope things are going okay for you. We sure would love to hear from you when you get a chance. Hugs!

Sundanceh's picture
Sundanceh
Posts: 4339
Joined: Jun 2009

I still stop by to see how you are doin':)

-Craig

z's picture
z
Posts: 1271
Joined: May 2009

Yes, I want to see you too, and I think of you often. Lori

JDuke's picture
JDuke
Posts: 443
Joined: Nov 2009

So touching to know that I am in your thoughts, just as you are all in mine. I haven't been visiting the site much. Glad I popped in tonight though. I am doing ok. I had the radiated seeds implanted in my celiac node on Nov. 22. Outpatient procedure; textbook. Good news was that they did not see anything else while they were looking around the area. They implanted 11 seeds which was quite a high number from what I was told. The node was approx 1 inch by 1 inch. They decided to put as many as seeds as they could fit, figuring more is better. It does suck that I am not supposed to have my dogs in my lap for a month due to their size. Dangerous for them to be exposed to the radiation. Go figure. No real side effects except I continue to feel queazy all the time. I have no appetite and can only eat small amounts of food at a time. This was happening before the seed implantation so we don't really have an explanation for it. Could be a lingering side effect of the extreme radiation to my left lung, since the esophagus and upper stomach is so near the field of radiation. There is a tiny spot on my right lung that we are "just watching". The plan is to repeat PET in early March and see how things are looking. I get tired really easy, I know you can relate to that Craig. Functioning with only one lung is certainly a contributing factor to that. I go, go, go then rest, rest, rest! Taking one day at a time and remain grateful for the days that I feel well enough to be active. My current GI oncologist left Moffitt and I met her replacement for the first time last week. I like him ok. He is also very active in GI related clinical trials and research. That seems like a pretty good thing to me.

I pray for all of you and hold you close in my heart.

God bless,
Joanne

mp327's picture
mp327
Posts: 3109
Joined: Jan 2010

OMG, it's SO good to hear from you! I think of you so often and wonder how things are going. I'm glad the implant of the seeds went well and nothing else looked suspicious. That's a shame about not being able to hold your dogs, as I believe our pets are some of the best healers. Sorry to hear about the queasiness and lack of appetite. I think I'm making up for your appetite loss! Hopefully, that little spot on your lung will have disappeared by the time March rolls around. I hope that you and the new doc will have a good relationship--that's so very important. I was SO fortunate with my docs--all top notch.

You continue to be on my prayer list and I appreciate it so much when you post an update, even though I know you may not feel up to it sometimes. May God watch over you as you continue the fight.

Hugs--
Martha

lizdeli's picture
lizdeli
Posts: 522
Joined: Jul 2009

So good to hear from you! Your post made my day. You remain in my prayers and I hope you grow stronger each day.
Blessings always,
Liz

z's picture
z
Posts: 1271
Joined: May 2009

Thank you for updating us, as I think about you often. I hope this month will go by quickly so that you may hold your dogs. Sounds like these seeds will wipe out any cancer in that celiac node. Good news that nothing else was found. I hope that as time goes by you will regain your stamina. I know for me with my lobectomy it took a good 6 months for the pain to subside and longer for my stamina to return. I have you in my thoughts and prayers. Lori

sissy310
Posts: 300
Joined: May 2010

Hi Joanne....don't come in here much except to check on people now and then and add when I feel what I have to add is helpful. Glad to hear that you are doing okay and glad you came in with an update. Continue to do so as there are many of us in here who think of you often and wonder how things are going. Take care and God bless, Marilyne

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