CSN Login
Members Online: 2

I am thankful....

XtremediverHCC
Posts: 57
Joined: Feb 2011

I am approaching the 5 year mark for my survival of primary liver cancer. The HCC was caused by Cirrhosis which was caused by Hep-c that I believe was contracted when I received the air gun vaccinations prior to deployment to Vietnam. I received a liver resection in January of 2007 for the removal of (2) 3.5 cm tumors. I am also fortunate as I am within 2 years of surviving the recurrence of tumors and having been treated with RFA. I go in on Friday (the day after Thanksgiving) for my blood work and the following Friday for my MRI. At this time of year I always look back to my first date of diagnosis (December 6, 2006) and realize just how fortunate I am because I was diagnosed early enough to survive this long. As is usual for me (and probably many of you, too) I am apprehensive about the testing and the results. I pray it has not returned yet again, but I secretly fear that it has. I am thankful for the time I have received since the 1st diagnosis and hope I will have more time still in my future. I live for today, every day. Tomorrow I will eat Turkey, mashed potatoes with gravy and dressing and cranberry sauce, corn and apple or pumpkin pie in the company of my loving, supportive wife, family and friends, but I will be thankful, for I am a survivor for now and hopefully for more time to come. I wish you all peace on this day of giving thanks and if my time is limited (isn't everyone's, really?) may you all have the hope and serenity that I feel inside and I pray for your continued survival, too. God Bless and be well.

march00
Posts: 20
Joined: Sep 2011

Hello, I enjoyed reading about your sucess, I had a resection last month
the tumor was 16cm and I was lucky they were able to remove it, the
doc said he got it all and he did not see signs of any more tumors.
I am feeling great and even playing basketball with my youngest son,
Going back to work this week...
Naturally I am scared to death, I wanted to ask if you did anything special
to your diet, maby jucing veggies or something?
Thanks
Nick

XtremediverHCC
Posts: 57
Joined: Feb 2011

Hey March00, as much as I hate to, I must admit I have only stayed away from alcohol from a dietary standpoint. Everything else I have always done in my life has remained the same for me. I am not saying that you don't need to change your diet or take supplements such as Milk Thistle, but for me just not drinking ANY alcohol is my solution. I have heard that juicing veggies is a very good idea as well as Vitamin D supplements. Good luck in your post surgical progression.

march00
Posts: 20
Joined: Sep 2011

Your story is positive!, thanks for sharing...
I go back to sloan tomorrow for a CT Scan and
a follow up the doctor, just wondering how you deal with the
anxity?
Thank
Nick

XtremediverHCC
Posts: 57
Joined: Feb 2011

Nick, I really don't do that very well! My mind will work overtime on the subject. I find myself researching everything I can find on HCC online and praying a lot. Some days, I just stay so busy it actually escapes my mind until I fall asleep at night. Then, I pray. HIS will be done, not mine. No, I am not a religious person, but a simple believer. I have no real control over this and I know it. Saturday is my birthday and I will turn 61, my life has not been a bed of Roses, but I have enjoyed everyday. My life experiences have taught me many things, however, the most important thing I have learned is to "let go and let God handle it". I never receive anything I can't handle, good or bad and I just keep the faith. The God of my choosing has blessed me with that faith. I truly enjoy everyday and every experience to the best of my ability. I believe that "If you are not living life on the edge, then you are taking up too much space." My doctors love my attitude and think it has much to do with my success so far. May your CT Scans be great-Jeff

slg
Posts: 200
Joined: Jan 2010

Hi XtremediverHCC,
I know we have discussed these injections before but wondering if you have come across anyone else who contracted Hep C from these injections. And also wondering if the Veterans Administration has offered anything to these Vets?

XtremediverHCC
Posts: 57
Joined: Feb 2011

Hi SLG, I am so sorry to read about your husbands decline, I have been following your post and wonder when my turn is up. As far as the VA is concerned, they will offer the HEP-C treatment, but no disability compensation that I am aware of. The Hep-c forums are full of other vet's with the same or similar story to tell. The US government is not admitting any responsibility for the epidemic, and will review each claim for disability on a case by case basis. I personally have not applied; my government abandoned us Vietnam Vet's a long time ago and unfortunately they will continue to deny their involvement ( too many Vietnam Veterans have this ailment and the resulting claims would probably bankrupt the VA is my opinion). Both your husband and you are eligible for the Aid and Attendance benefit if you have not looked into that yet. Also, go the veteransupport.org and see if you can get any assistance for your situation through that site. My prayers are with you, both.

slg
Posts: 200
Joined: Jan 2010

Thank you XtremediverHCC,

This is becoming so overwhelming I don't know where to begin to think about after he's gone.
My husband was also exposed to Agent Orange in Vietnam and we already tried to file a claim regarding that so I don't see them ever admitting wrong doing witht he immunizations.
Thank you for your support.

XtremediverHCC
Posts: 57
Joined: Feb 2011

The Agent Orange controversy is another thing all together. I, too, was exposed to heavy concentrations as an Army Ranger operating in the Laos/Cambodian/Vietnam triangle area and actually received an unsolicited letter from the VA several years ago informing me of the possibilities and risk of cancer from that exposure. They do not, however, list Liver Cancer (specifically HCC) as one of the possible types to receive benefits for...so I don't think that route will help much.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network