Nov 21, 2011 - 10:49 am
I'm new to this forum but from what I've read, there are lots of people to talk to here and that's exactly what I need.
My mom was diagnosed in May 2010 with PPC. She went through 6 rounds of chemo, had her debulking surgery, and then had either 4 or 6 (can't remember), more rounds of chemo. The first few rounds of chemo went so well that when they went to do the debulking surgery, there was nothing to remove (heard this directly from the surgeon's mouth). The surgeon did take out her omentum and appendix though, just to be safe. The last few rounds of chemo were given as a follow-up, again, just to be safe.
She's been doing fine since about April of this year but now she's noticing distention and swelling in her abdomen. Her CA 125 is back up to 25 (I know it's typically higher than 35 is when they start to get concerned), but its been increasing with each test she's had in the last few months. She's scheduled for a PET/CT scan on Wednesday and we'll hopefully know more then. I just know from what I've seen online that the recurrence rate for PCC is really high.
Everything I've seen online doesn't give much hope for her or any PPC patient. The survival time periods that I've found tell me she has between a year and two years left. I don't know if her doctors have said anything to her about her prognosis or not as she won't share that kind of information with my brothers and I because she doesn't want us to worry. I'm just so confused and terrified and I have no idea where to go for information. No one seems to have much information on PPC, just Ovarian, which is obviously not what my mom had/has. Can anyone give me more info on this type of cancer or give me some hope that I may have more than a year or two left with my mom?