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I Need Advice on Protection

cph1127's picture
cph1127
Posts: 51
Joined: Jun 2011

Well it has been 3 months since my last tx. I have returned to work on a very limited time frame and I am having trouble with not making it to the bathroom in time. I never know when it is going to hit and since the radiation did such a number on my opening I have very little control. In the last 3 weeks I have had to go directly home and jump in the tub. This is not diarrhea but just mushy (sorry for the graphics). So I have decided I need to wear a diaper or protection while I am out of the house.

Does anyone have experience with this after your treatment and what brands are the best. I really do not want it to show under my clothes. Thanks for any suggestions.

Dee2005
Posts: 24
Joined: Oct 2011

Geez, I hated that! I at one point couldn't even hold solid bowel movements. Have you spoken to your doctors about this? Sometimes spinchters get damaged and don't work properly and need time to heal. The diapers will help, but double check with your doctors. Wishing you the best and a quick resolution to your problem. I am so sorry you are going thru this! I really feel for you and completely understand!

z's picture
z
Posts: 1273
Joined: May 2009

I experienced control issues for a good 6 months. I knew when I felt I had to go I better go now, no putting it off. I am fortunate that I had no accidents at work, but I had some at home. It just takes a while for our insides and the spincter muscle to heal. I think diapers are a great idea. I wish you well. Lori

AZANNIE's picture
AZANNIE
Posts: 396
Joined: Mar 2011

I know what you mean. I completed treatments June 1, but as a precaution wear a brief whenever I leave the house. I've tried Depends and Affirm (Target's brand). They're like pull ups and are a bit bulky. Affirm brand has softer elastic.

duckyann
Posts: 162
Joined: Jun 2009

cph - I also had problems and still do occasionally. I have been lucky that it hasn't happened out either. Usually when I am at work if someone is in the bathroom and I have to go I just SCREAM and say hurry up and get out....hahaha as I sit in the hallway! Annoying but I am happy to be here! It will get better just give it time.

cph1127's picture
cph1127
Posts: 51
Joined: Jun 2011

I know what you mean. I had that happen today but I made it in time. Had a depend on but it is so bulky that it has rubbed me raw. Oh well, like you said - I am thankful to the good Lord that I am spending Thanksgiving with my family this year and not in a hospital or worse. Have a wonderful Turkey Day Cindy

AZANNIE's picture
AZANNIE
Posts: 396
Joined: Mar 2011

Try the Walmart brand. They seem to be softer and less bulky and they're also cheaper. Some brands feel like a bale of cotton...lol

mxperry220
Posts: 369
Joined: Mar 2011

I am 34 months post treatment and take 3 immodium daily. The oncologist said it would not hurt to take them indefinitely. The first 6 months post treatment were a challenge. I do not have diarrhea but was having 4-6 BMs daily. I also have been eating ACTIVIA yogart which has probiotics which help regulate the colon. I now have 2-3 controlled BMs daily. Prior to anal cancer my norm was 2-3 BMs daily.

Hope this helps.

alis7910
Posts: 80
Joined: Jun 2010

Hi:
I am a little over 2 years after treatment, and I still am incontinent once in a while when I am out and not right near a bathroom; it definitely causes stress. What I do is carry and extra pair of underpants and panty-liners at all times, and sometimes an extra pair of pants. i also wear panty-liners at all times. if diapers make you feel safer- go for it. I think they are coming out with new designs all the time.
Hang in there; it does get easier with time.

melbas's picture
melbas
Posts: 43
Joined: Jul 2010

I am at a year and a half post tx, and am still having problems with it. I have not gone back to work because of that plus other side effects. I keep reading that it will get better, so I just keep praying. Good luck, Melodie

Boobits
Posts: 28
Joined: Oct 2011

I just happened to see this subject, since it is constantly on my mind.

Am trying to find the right level of protection when I need it. So far using a panty liner has helped a lot, but I have gone a step further and use a gauze square or a cotton cosmetic pad. Sorry to gross you out, but I fold them over and stick it between my 'cheeks' to help block my butt. It is a big help, especially when I don't know how my body is going to behave on any given day; it's particularly helpful in the mornings and when I have to go out for a while. At first it felt lumpy, but I have gotten used to it, and it has saved a lot of underwear!

I swore that when I finished treatment I would splurge on new undies, but now that I know that there is no 'normal' for me, maybe not.

duckyann
Posts: 162
Joined: Jun 2009

I don't use gauze between my cheeks but I do use cotton balls and it really does help. It is the same concept. I am almost 31 months past treatment and still have to do this sometimes. Actually before and during treatments my colorectal doctor recommended I do this to catch the so called "discharge". Sorry for the graphics. I also thought I would buy some new undies and well I have but only cheap ones for now...hahaha Oh well I can live with this as long as I am here and cancer free!

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