Tony in hospital Small intestine question

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alexinlv
alexinlv Member Posts: 194 Member
Good morning, my husband Tony, stage iv, has now been in hospital for 7 days going on 8. doctors have yet to determine what is going on. Fever has been gone for several days. But the diarrhea is persistent and along with abdominal pain. they have done tests, scans, ultrasounds, blood work, stool,samples, etc. Nothing is conclusive. They are prepping him for a colonoscopy on Tuesday in which they will try to see further into the small intestine which shows a thickening based on the scans. so any ideas on possibilities of what that could mean? He's so sick. Ofcourse my mind goes to small intestine cancer. I know we have to wait and see but it,s so hard with no answers yet. Thank you!

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  • John23
    John23 Member Posts: 2,122 Member
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    alexinlv -

    Re:
    "They are prepping him for a colonoscopy on Tuesday in which they
    will try to see further into the small intestine which shows a
    thickening based on the scans. so any ideas on possibilities of
    what that could mean?"


    A colonoscopy deals with the viewing of the inside of the colon
    (the large intestine), not the small intestine. The large intestine
    is usually about 5 foot long.

    I'm not too sure of there's much of a way they can look inside
    the small intestine, since there's about 25 feet of that!

    Rather than panic over what isn't known yet, consider this:
    After any major abdominal surgery there will be hernias and
    adhesions. Adhesions are part of the natural healing process,
    but can be a major problem when they occur in the abdomen
    because they can cause the intestine to stick to an organ (or itself),
    or form in a band-like manner (rolling stones?) around the
    intestine itself. When that happens, it can cause bloating, pain,
    constipation, etc. A scan or sonogram may appear to have
    a "thickening" at the area of an adhesion, since it actually
    is a thickening; the scar/adhesion -is- tissue build-up.

    Most often, an operation to correct an adhesion results
    in more adhesions. There are some products that can be used
    to "pack" inside the abdomen to help prevent adhesions. You
    can ask your surgeon about that.

    While your asking your surgeon about that, you should also
    have him mark out the best spot for an ostomy, if there is
    any chance what-so-ever that a permanent one is needed.
    Please take the time to do that, since a poorly placed ostomy
    formed out of haste and necessity, can present a real problem
    for one that has to live with one; Plan ahead.

    Until told otherwise, I would assume it's an adhesion, and
    relax a bit. Worrying about what might never be, is a terrible
    waste of energy!

    Think good health!

    Be well,

    John
  • annalexandria
    annalexandria Member Posts: 2,571 Member
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    Hi Alex-
    I truly don't want to add to your worries, but for me, a thickening in the small intestine that showed up on a CT scan meant a tumor was developing there. I had a lot of pain in the area too. My doctor decided it was adhesions from my previous surgeries and didn't explore further, which didn't end very well for me. Cancer got all over the place and landed me in emergency surgery before they figured out what was going on. Has a PET been done yet? More than a colonoscopy (esp for the small intestine), this would give you more information about what's going on. I really hope in your husband's case it turns out to be something benign. Take care-Ann
  • Buckwirth
    Buckwirth Member Posts: 1,258 Member
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    John23 said:

    alexinlv -

    Re:
    "They are prepping him for a colonoscopy on Tuesday in which they
    will try to see further into the small intestine which shows a
    thickening based on the scans. so any ideas on possibilities of
    what that could mean?"


    A colonoscopy deals with the viewing of the inside of the colon
    (the large intestine), not the small intestine. The large intestine
    is usually about 5 foot long.

    I'm not too sure of there's much of a way they can look inside
    the small intestine, since there's about 25 feet of that!

    Rather than panic over what isn't known yet, consider this:
    After any major abdominal surgery there will be hernias and
    adhesions. Adhesions are part of the natural healing process,
    but can be a major problem when they occur in the abdomen
    because they can cause the intestine to stick to an organ (or itself),
    or form in a band-like manner (rolling stones?) around the
    intestine itself. When that happens, it can cause bloating, pain,
    constipation, etc. A scan or sonogram may appear to have
    a "thickening" at the area of an adhesion, since it actually
    is a thickening; the scar/adhesion -is- tissue build-up.

    Most often, an operation to correct an adhesion results
    in more adhesions. There are some products that can be used
    to "pack" inside the abdomen to help prevent adhesions. You
    can ask your surgeon about that.

    While your asking your surgeon about that, you should also
    have him mark out the best spot for an ostomy, if there is
    any chance what-so-ever that a permanent one is needed.
    Please take the time to do that, since a poorly placed ostomy
    formed out of haste and necessity, can present a real problem
    for one that has to live with one; Plan ahead.

    Until told otherwise, I would assume it's an adhesion, and
    relax a bit. Worrying about what might never be, is a terrible
    waste of energy!

    Think good health!

    Be well,

    John

    Alex,
    I think John is giving some pretty sage advice here, and he certainly has more experience with small intestine issues than anyone else on the board.

    He is also right about placing for an ostomy ahead of the surgery, even if an ostomy is not expected. The process involves working with a WOCN nurse and measuring the waistline, how the pants fall etc. A poorly placed one can be a lifestyle disaster.
  • tko683
    tko683 Member Posts: 264 Member
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    Hope they figure it out soon
    Alex, I am so sorry to hear that Tony is still in the hospital and in so much pain. I hope they figure it out soon so they can begin treating him. I agree with the Pet scan or maybe an MRI of the abdomen. Sometimes CT scans don't show GI problems. My husbands rectal tumor didn't even show in the CT scan. Thinking of you and hoping for answers for you soon. Hugs, Teri