Here's my story:
PSA 3.3 on 1/2003
PSA 4.4 on 1/2004
Biopsy on 2/14/2004, Gleason score of 3+3. Clinical stage T1c
BNS robotic LRP on 6/22/2004 (age 55)
Post-op Gleason Score was 4+5. Tumor was present in both the right and left lobes, estimated to involve 30% of the entire gland. There was extensive invasion of both right and left seminal vesicles. Focal extracapsular extension was identified in sections from the right base/seminal vesicle interface. Microscopic lymphatic invasion was also identified in this area. There was extensive perineural invasion in these sections. Although no tumor was seen transected in these sections, cauterized tumor was identified less than 0.2 mm from the nearest inked margin along the left anterior base, adjacent to the seminal vesicles. According to report it was difficult to entirely exclude that tumor extends beyond the area due to cautery artifact. Other than this area, the margins of excision are negative.
After surgery PSA was <0.1 until 1/2009 when it went to 0.1>. PSA at <0.1 for 4 1/2 yrs.
Underwent 37 treatments of radiation therapy starting 6/2009 when PSA was 0.2. Radiation didn't stop PSA from going up.
PSA is currently at 2.5, doubling time for PSA is about 3 months, doc is recommending hormone therapy, lupron shot every 3 months.
Everything I read, there is so much debate from the "experts" as when to start hormone therapy.
I would appreciate hearing from anyone who has started hormone therapy, side effects, etc. and to those of you who have decided to wait until the cancer spreads and then go on hormone therapy.