Enterocutaneous Fistula

gerryo · November 2011

Does anyone have an Enterocutaneous Fistula or had one. Does anyone have any insight about fistulas. I would appreciate feed back from anyone. Thanks.

Gerry

John23 · November 2011

Gerry -

You'll find info here: UOAA.ORG

Fistulas are a menace. Medicare does not cover pouching systems
for fistulas, so it can also be an expensive venture with fistula pouching
costing as much as $400 per month.

Make sure you have your surgeon working with you, to make
any insurance claims valid. It's often a simple matter of how the
claim is entered into the "system", to be able to see positive results!

It seems that the waste decides it can't wait to find an exit. and
burrows it's way out of your body any way it can.

The Chinese came up with a method called "threading", where they
run a tiny piece of "thread" through the entire fistula, and allow it to
roughen the inside surfaces of the fistula. With other herbal help,
the fistula heals itself from the inside-out, closing off what was once
it's escape route.

Western medicine has no such treatment..................

Check out the UOAA web site, it deals with ostomies specifically,
but includes fistulas also.

Good luck!

(and better health)

John

gerryo · November 2011

John23 said:
Gerry -

You'll find info here: UOAA.ORG

Fistulas are a menace. Medicare does not cover pouching systems
for fistulas, so it can also be an expensive venture with fistula pouching
costing as much as $400 per month.

Make sure you have your surgeon working with you, to make
any insurance claims valid. It's often a simple matter of how the
claim is entered into the "system", to be able to see positive results!

It seems that the waste decides it can't wait to find an exit. and
burrows it's way out of your body any way it can.

The Chinese came up with a method called "threading", where they
run a tiny piece of "thread" through the entire fistula, and allow it to
roughen the inside surfaces of the fistula. With other herbal help,
the fistula heals itself from the inside-out, closing off what was once
it's escape route.

Western medicine has no such treatment..................

Check out the UOAA web site, it deals with ostomies specifically,
but includes fistulas also.

Good luck!

(and better health)

John

Thanks for your words. He
Thanks for your words. He has been dealing with this for 14 months. He is stage 4 with mets to liver and lungs. Chemo is every 2 weeks and he seems to be able to deal with all of it. He cannot deal with the fistula. September he had a plug put in but it didn't work. I do all of his care eventhough we have a nurse who comes to the house weekly. He is considering surgery next year to close the fistula. 80% chance it will work. 10 hours on the table, icu, vent and 3 weeks in the hospital. No chemo 1 month before and 2-3 months after. If it works he would have some type of life. Right now he will not leave the house because you never know what is going to happen with the fistula. As I said in the beginning, thanks for responding.

Gerry

Buckwirth · November 2011

John23 said:
Gerry -

You'll find info here: UOAA.ORG

Fistulas are a menace. Medicare does not cover pouching systems
for fistulas, so it can also be an expensive venture with fistula pouching
costing as much as $400 per month.

Make sure you have your surgeon working with you, to make
any insurance claims valid. It's often a simple matter of how the
claim is entered into the "system", to be able to see positive results!

It seems that the waste decides it can't wait to find an exit. and
burrows it's way out of your body any way it can.

The Chinese came up with a method called "threading", where they
run a tiny piece of "thread" through the entire fistula, and allow it to
roughen the inside surfaces of the fistula. With other herbal help,
the fistula heals itself from the inside-out, closing off what was once
it's escape route.

Western medicine has no such treatment..................

Check out the UOAA web site, it deals with ostomies specifically,
but includes fistulas also.

Good luck!

(and better health)

John

Threading
is commonly thought of as an Ayurvedic treatment (India, not China).

In India the treatment is called Ksharasutra, but in western medicine it is referred to as a Seton Stitch, and dates back at least to Hippocrates.

You may want to ask about the seton stitch, as this may be something that can be done to aid relief and healing and be non-invasive enough to do it while he is on chemo.

John23 · November 2011

Buckwirth said:
Threading
is commonly thought of as an Ayurvedic treatment (India, not China).

In India the treatment is called Ksharasutra, but in western medicine it is referred to as a Seton Stitch, and dates back at least to Hippocrates.

You may want to ask about the seton stitch, as this may be something that can be done to aid relief and healing and be non-invasive enough to do it while he is on chemo.

Oh for cryin' out loud.

Re:
"Threading is commonly thought of as an Ayurvedic treatment (India, not China)."

Traditional Chinese Medicine and Fistulas...

Google *this*.

India.... China... Taiwan... Brooklyn?

I feel like we're married, Blake!

(and I think I want a divorce)

Best of health anyway!

John

Buckwirth · November 2011

John23 said:
Oh for cryin' out loud.

Re:
"Threading is commonly thought of as an Ayurvedic treatment (India, not China)."

Traditional Chinese Medicine and Fistulas...

Google *this*.

India.... China... Taiwan... Brooklyn?

I feel like we're married, Blake!

(and I think I want a divorce)

Best of health anyway!

John

So?
That it is/has been used in TCM does not make it exclusive to the Chinese, the east or original.

No insult meant John, just thought I would add something that maybe the OP could actually use, whatever it is you want to call it.

Enterocutaneous Fistula

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