Submitted by Cherokee6 on October 29, 2011 - 4:05am
Thank you for this site.
My story is below. The first question I have is this.
My primary concern is, because my PSA never got above 2.2 and I turned up with a Gleason 9, is my current PSA of >.1 really a true indicator of the presence or reoccurrence of the cancer? I feel that if I have any movement at all in my PSA that I will be in deep doo doo.
Does anyone know of any other method of checking besides bone scan and CT scan? I'm not sure but I think the PSA is the primary tool that the VA uses to determine disability even thou my VA doctor has written to them saying that Prostate Cancer is really a 15 year disease. I feel very fortunate that I have the VA on my side and feel bad for someone going it alone with this disease.
60 years old when diagnosed
PSA only 2.2 at diagnosis. (Don't trust only PSA as indicator)
DRE (digital rectal exam) lumpy
Bone scan negative for mets
CT scan negative for mets
Biopsy (November 13, 2009) Yes, it was a Friday
12 of 12 biopsy samples positive for cancer
Radical Prostitectomy (December 14, 2009)
Positive margins, seminal vesicle involvement. negative lymphnodes, negative mets
Gleason score 4+5= 9
Stage T3b N0 M0
Current PSA is less than .1 (August 2011)
I ware a Cunningham clamp during work hours to cut down on leaking. (hurts after a while so can't leave it on for more than a few hours)
If I don't ware it I change pads from 6-8 times per day.
At night I get up 5 or more times to go to bathroom and sometime wake up with hot flashes from hormone treatments.
Besides that, Life is good!