Oct 27, 2011 - 11:43 am
Feel it proper to let everyone know that Linda is having a rough time. Saw a posting yesterday and felt anyone who doesn't peek on the Ovarian part of site, might want to read what she posted --
She's such a fighter, always willing to show a positive side to anything. Keep her in our prayers as she requsted~
-------------------- Linda P...
I think each of the women who have reached this stage of their journey wonder if sharing a poor prognosis does this Discussion Board more harm than good. I remember all too well the dispair and grief that rocked our little world here when we lost Nancy, Dorian, Bonnie, Theresa, (too many others)....and my own personal reaction of sincere grief all mixed up with identification with the dying warrior's mortality and fragility. Then I think of the newbies here and the bright hope they have that I don't want to chip away at. I think that's why you see so many of our sisters here pulling away when they turn down this last path.
And it's also hard to tell it one more time when it seems like for days all I've done is try and spin this for my family and friends, one after the next, into something they can handle for now. And I know you all won't be as easy to buy into a rose-colored version. So I'll just tell you straight.
I have liver failure. All of those scans and tests showed no blackages anywhere, nothing 'fixable' anywhere. The good parts of my liver just haven't stepped up and picked up the work load of the bad parts of my liver we so successfully attacked with the radioembolism. Although my RBC, WBC, even platelets are all good and my vital signs excellent, my oncologist believes that additional treatment now would shorten my life and destroy the good quality of life I can still enjoy if I step away from the battle now. My eyes are slightly yellow with jaundice and I've gained 5 pounds with the ascites which feels HUGE to me, but apparently is considered a small amount still by my team. (We will do sonogram-guided parasentesis is I get really uncomfortable and I am taking 2 water pills daily to help with it.) I got opinions from a liver specialist and the doctor who did my radioembolism and everyone agreed. My acites sample had lots of malignant cells in it, so even if my liver kicks in I would still have new cancer to deal with. I've decided that palliative medicine can be a strategy, too, to staying alive as long as you can. I'm drinking 4 cans daily of Replete ($10/day!!) and eat whenever I have any appetite and WORK at that. I am consciously trying to make the most of every day and do a little work in the garden when it's sunny.
I met with palliative medicine yesterday and hospice is coming out tomorrow so that we can have an established relationship when the time comes that I need them. Palliative Care has already set me up on a pain management regime and bowel management regime. I never took painkillers the 3 years I've had cancer, and I am surprised to see how they can make it possible for me to do MORE, and have more fun, since I don't have the constant discomfort. I don't think of myself as in pain, just uncomfortable, but when I take those Oxicodone all that melts away. I learned something here.
I've always said I'd go down swinging, fighting it until the end, as I'm sure so many of you have. But when it doesn't make sense, choosing to conserve the beauty of the time you have left can be just as brave a choice. I hope you all can respect that. Please keep me in your prayers.