Paraganglioma (Help)
Options
JR34
Member Posts: 3
Hi my name is Jonathan. I have only recently been diagnosed with metastatic paraganglioma. I have mets in my orbit,humerus,femur and abdomen. I have one all my work up and I stil have no answers. The healthcare system in Ireland is pretty poor and have not even given me a treatment plan or anything. I have no symptoms and I feel fit and healthy irespective of my diagnosis. I am an Mibg candidate but I do not think any hospitals in Ireland cater for this. I would love answers but my consultants are not even returning my calls. They discharged me from hospital last week and said that they will contact me. Is this normal?
0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.2K Cancer specific
- 2.8K Anal Cancer
- 440 Bladder Cancer
- 306 Bone Cancers
- 1.6K Brain Cancer
- 28.4K Breast Cancer
- 391 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 12.9K Head and Neck Cancer
- 6.3K Kidney Cancer
- 666 Leukemia
- 789 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 235 Multiple Myeloma
- 7.1K Ovarian Cancer
- 53 Pancreatic Cancer
- 486 Peritoneal Cancer
- 5.3K Prostate Cancer
- 1.2K Rare and Other Cancers
- 532 Sarcoma
- 718 Skin Cancer
- 647 Stomach Cancer
- 190 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards