Oct 22, 2011 - 10:27 pm
Just had my follow up PET scan - doctors sent me because the neck ultrasound showed 2 suspicious nodes in my neck. There are definately 2 more to worry about - one kind of under my jaw near the end of the jaw bone, the other just above my collarbone - both right side. The rest of my neck and body remain clear.
I've been through a TT, RAI, bilateral neck dissection, RAI again...and its still not gone.
They have suggested surgery followed by external beam radiation. The thought is that RAI is not being effective.
I'm really angry that its back again - but I know that lots of you here have been through the same or worse.
So words of advice? Suggestions for best treatment options? Help!