CRAZY

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json_2011
json_2011 Member Posts: 100
in Esophageal Cancer #1
I am reading these posts , and just realizing how crazy this disease is. How can someone with stage 3 that can not hardly swallow or stage 2 , have "symptoms" ; When mother has stage 4 no "symptoms" , feels great , ate great before chemo of course . This is why they call c the silient killer?!? Just posting this for everyone to see the wide spectrum of this disease. By the way Mother did complete 3 treatments of Taxol - Cystplatin . They went for number 4 but she fainted twice after number 3 and are at a stalemate with the petscan meachine going down today. They also did a mri on her head to make sure nothing is wrong there. Well gotta have that petscan to do the radation ! Much love to all hear.



Jason

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  • BMGky
    BMGky Member Posts: 621
    #2
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    You are right about this
    You are right about this being a crazy disease. Wish I had some well thought out philosophical statement to reply, but I don't. It is so good for everyone here to share as it is so lonely facing the diagnosis and treatment.

    Hope your Mother has an easier time. Is there any possibility that dehydration is playing a part. I know so little, but I've read how dehydration really pulls the patient down during chemo. I know it affected my husband.

    Good luck to your Mother and to you. BMGky
  • chemosmoker
    chemosmoker Member Posts: 501
    #3
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    CRAZY and CRUEL
    CRAZY is right!!
    I am stage IVb (think they dropped the b?)
    I eat anything I want, including a ribeye steak last week, and the baked potato to go with it. I have tons of pain, but it is managed with the meds. I had NO idea ANYTHING was wrong.
    So many similar stories, and it bugs me when a stage II gets worse symptoms than I have. I agree with you both.
    CRAZY. CRUEL.

    -Eric
  • jim2011
    jim2011 Member Posts: 115
    #4
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    fainting spells
    I had the fainting and that eventually led to the hospital for 14 days to recover after the 3rd round of chemo. I attribute my problems to lack of fluids. EC was silent for your mother but it wont be able to hide for anyone that you can tell your story to. My mother and a neighbor lady died from EC and so I was on the look-out for the symptoms but even I was fooled for months. I easily controlled the pain behind my sternum by taking 3 advils every 4 hours and then after months of that I insisted on an upper-endoscopy and the cancer was found. I have survived the standard of care in the US for this type of cancer and feel pretty good. It will be 1 year from diag for me in just a couple of weeks. We NEED to get the word out!
    I wish you and your mother and the rest of your family the best.
    Jim
  • Heeran
    Heeran Member Posts: 171
    #5
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    Keep us informed
    Hi Jason,
    Please keep us informed regarding your mom's results. Radiation has been kicking my mom's butt. Today we completed 23 cycles. 5 more cycles to go. She is week, vomiting, tired, bald, constipated, and sick of taking all these medications.....but I tell her, we killed more cancer cells today. Only one more week to go. Not sure if this helps her but it helps me deal with it. I hope you mother gets the results, stays strong enough to kill EC cells.
    Heeran
  • mardigras
    mardigras Member Posts: 215 Member
    #6
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    jim2011 said:

    fainting spells
    I had the fainting and that eventually led to the hospital for 14 days to recover after the 3rd round of chemo. I attribute my problems to lack of fluids. EC was silent for your mother but it wont be able to hide for anyone that you can tell your story to. My mother and a neighbor lady died from EC and so I was on the look-out for the symptoms but even I was fooled for months. I easily controlled the pain behind my sternum by taking 3 advils every 4 hours and then after months of that I insisted on an upper-endoscopy and the cancer was found. I have survived the standard of care in the US for this type of cancer and feel pretty good. It will be 1 year from diag for me in just a couple of weeks. We NEED to get the word out!
    I wish you and your mother and the rest of your family the best.
    Jim

    Hi Jim,
    I just wanted to say hello again and thank you for your positive and heart warming posts.
    Your posts have helped me to stay positive and to have a lot of hope for a good final outcome.
    Rob and I are in England now. He is being treated in a hospital of excellence for EC about three and a half hours drive from where we live. It is Addenbrooks Hospital, a Cambridge University Hospital which has a centre dedicated to EC, so we are lucky.They also do a lot of clinical trials here.
    They are re-doing all his tests, which has put us back a bit, but as least he isn't being treated by a surgeon who has done less than five ops and does not specialise.
    We are going to buy a car today and rent a house here for the duration of his treatment.
    I had to leave my daughter and two little grandchildren back in Gran Canaria, so my lovliest support is not with me, but hopefully Rob will have a better than average chance here.
    Bless you Jim and prayers for everyone here.
    Marci x

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