CSN Login
Members Online: 7

Grade 3 Anaplastic Oligo - OHSU BBBD Trial

Posts: 22
Joined: Oct 2011

Has anybody tried this after disease progression despite radiation and Temodar?

cindysuetoyou's picture
Posts: 513
Joined: Dec 2009


I just saw this post on CSN after I was directed here by a google search on the BBBD. I'm sorry that I didn't see this sooner.

My son David is currently doing this clinical. I'd love to correspond with you regarding this procedure.

We have had a rough time, but we also had "dramatic" results. Our NO said that he and his team are "ecstatic". There has been a marked reduction in David's tumor load, just from the December to January MRIs. It's really obvious...you can see the MRIs in my expressions section.

We have only done 2 BBBDs. We are scheduled for a third one in March.

My son David is battling a recurrence of an anaplastic oligodendroglioma. He is 28---he was 25 at the time of diagnosis. (May 2009) He had a complete resection, followed by 6 weeks of radiation, and he was taking Temodar 5 days a month until July of 2011, which is when we were first aware of the recurrence.

I hope you are doing well today. Please let me know if you have any questions or if I can help you in any way.

Love and blessings,
Cindy in Salem, OR

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2016 © Cancer Survivors Network