Oct 17, 2011 - 7:54 pm
hello to everyone...i found this board and take great comfort in many of the posts....i tried to find a match for my stage IV in two support groups and was told there was no one! that was pretty discouraging. i was diagnosed 13 months ago ... i was having trouble breathing and my pcp thought i had asthma so he kept prescribing inhalers which obviously did nothing. he finally sent me to the emergency room where a chest xray showed both lungs full of fluid...i had 3 ltrs drained from one and have 6 hrs of surgery a week later...went thru 6 rounds of chemo. needless to say, it was a terrible year. my ca125 is creeping up again//120 now and the catscan is showing spots on my lungs, so my onc has me on tamoxifen to try to stabilize the ca125. to look at me, you would never guess there's something that terrible going on inside...i always thought people with cancer were bedridden just waiting for the end. that is totally not the case. i travel, work, play with my grandson and am very active socially. it's not the sorority i would choose to join, but we are all in this together. we must all stay positive and try to enjoy every day we are given. my prayers go out to each and every one of you that is affected with this insidious disease.