Oct 17, 2011 - 6:08 pm
I know many of you are caregivers and have some experience with liver failure & distress. I have been fighting a Grade 3 rare recurrent uterine cancer for 3 years that metasticized to my liver in November of 2010. I also have quite a few malignant lymph nodes here & there, but it's my liver that has been diligently trying to kill me. I had radioembolization this summer June 1 (right side) and August 26 (left side) & early indicators note a "remarkable improvement" in my liver tumors.
So why am I now having all these horrible symptoms? & how much trouble am I in? Could I be heading down a dark road that I may not be able to survive? Here's my stats:
My bilirubin is 4.8; Alkaline Phosphates is 263; AST is 109; albumin 3.0; platelets 75. Scarier than those numbers: my eyeballs are yellow-ish, and I gained 7 pounds in ascites fluid in the past week. (They have me on 2 water pills, 80 mg total a day.) I have the classic chalky-colored stool and bright orange urine.
I had an abdominal ultrasound last week that showed that all of my blood vessels and arteries, etc. in and near my lover are open and normal. The only thing they saw was that my gall bladder had thick walls and was 'sludgy'. It also showed that my bile duct is NOT blocked & not constricted by a tumor or anything. That must mean that the bile I need for digestion is being held up in the liver, & I'm not sure there is a way to get it out of there. Thursday I'm to have new blood labs and an endoscopic ultrasound.
I read all the dire things that can/will happen if we can't get my bilrubin back down: kidney failure, liver failure. Please be straight with me; I am a big girl. Does this look like I might be a short-timer?