Sep 30, 2011 - 1:10 pm
Well, so much happened in a short amount of time that I don't really know where to start.
David has been struggling with excruciating headaches for a while now. Since July, I guess. After several different types of MRIs and several trips to the ER, his NO scheduled another craniotomy for Tues. 9/27. On Monday he was rushed to the ER with another horrible headache and this time the CAT showed that his tumor was bleeding slightly from several tiny prickpoint spots. His NO went ahead and admitted him on the spot, and David had his scheduled surgery the next day.
The neurosurgeon and his NO are very pleased with the results of the surgery. They got a lot of "crud" out---not all of it because they didn't want to change who David is, or impair him. We hope to be able to treat the remainder of what is left with chemo or something. We have to wait for the path report and the tumor board's recommendation. We will find all of that out on 10/13, which is when David's follow-up appt. is scheduled.
The doctors and the surgeons couldn't tell what exactly it is that they took out. Some of it was a cyst, some of it was tumor, and some may have been radiation damage. They are unsure because there was not much vascularity---not a lot of blood vessels that feed a tumor. So the portion that they removed might contain a mix of high and low grade glioma, not just all high grade. They said that's good news. I am cautiously optimistic because we've been given good news before and then had some nasty surprises. I'm waiting for that pathology report.
It is so amazing how they can dig around in someone's brain and then have that person be like normal right after the surgery. The next day ,David was up and taking walks, visiting with friends, reading college books, typing away on his Mac....just like nothing had happened. His surgery started at 12:30, was over at 3:30, and he was eating dinner by 7:30. He's very tired, of course, but neither one of us got much sleep in the hospital. The best part---no headaches! It was like a magical cure for his headaches. He's had them for so long....it's wonderful not to see him in pain. His incision hurts, but nothing like his headaches did, and his incision is already healing.
The next big issue will be the tumor type and how to treat it. NIH told me stuff that I just can't bear to type....survival rates, the rate of growth of recurrent tumors, that kind of stuff. If I think about it, it makes me so grief stricken that I can't even have a moment of peace. There's nothing I can do about it anyway, except pray, and I'm already doing a lot of praying! I want to enjoy these days with David when he feels good and can do things and just live his life. And NIH couldn't say for certainty that it would go they way they predict, anyway.
So...David had surgery on Tuesday, and we came home on Thursday. I stayed with him in the hospital, and I spent the night at his apartment last night. I will head home today, and he will have a friend stay over tonight and Saturday. He will come to church on Sunday, and I'll drive him back home after our family dinner. On Monday, less than one week after having brain surgery, he will go back to Portland State University. Pretty amazing! I have some concerns about his school workload, but I'm not going to tell him that he can't do it. (He's taking 18 credits.) We can deal with it later if it's too much for him.
That's where we are at today. Please keep us in your prayers...we are hoping and praying for a good report on 10/13.
Love and blessings,