CSN Login
Members Online: 17

Good results from today's checkup

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

Today, I had my six-month checkup with my gyne-onc. It has been two years and ten months since I finished six rounds of carbo/taxol and brachytherapy for Stage 1a UPSC, and my doctor said everything looks great. I was terrified for weeks before this appointment, so I am happy to report these results.

Love to all,

Jill

upsofloating's picture
upsofloating
Posts: 473
Joined: Dec 2009

So wondeful to hear the good news of your continued good health! May this go on and on!
Thanks for sharing this!
Annie

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

I appreciate your good wishes.

When are you leaving for vacation? Have you had your birthday yet? You are such a kind person, and I wish you good health and much, much happiness. Happy birthday!

Jill

upsofloating's picture
upsofloating
Posts: 473
Joined: Dec 2009

Thank you, Jill, for kind words and birthday wishes! The Big Day is next week and actually after I return from trip - I leave tomorrow. I just noticed that not only are we almost exactly the same age, we joined this discussion board only a few days apart! As well, in my 'productive' years, I worked in publishing and actually authored/co-authored a few books the company published - nothing fantastic, just noting common threads ;-)

Annie

PS Love the new photo!

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

Have a terrific time!

It does not surprise me that you are a writer, as you are very skillful at expressing yourself. I'd be interested--if you'd care to share--in knowing what types of books you authored/co-authored.

Also, is the picture you commented on the one that is up there now? I had a picture of myself and a friend but changed it.

HellieC
Posts: 439
Joined: Nov 2010

We all need to hear good news - and this is the best! Long may your good health continue, Jill.
best wishes
Helen

california_artist
Posts: 850
Joined: Jan 2009

emailed you a long New York congrats.

YOU IS MY HERO.

YOU IS SMART.
YOU IS BEAUTIFUL.
YOU IS DETERMINED.

YOU IS MY FRIEND, and you help me grow. Can never thank you enough for your kindness you---

the rest rhymes. see next email.hehehehehhe

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

I just wanted to clarify Claudia's reference. I had shared that in the book (and movie) The Help, Aibileen speaks these words every day to her young charge Mae Mobley:

"You is kind.

You is smart.

You is important."

How many kids (or adults, for that matter) would benefit from having these words spoken to them on a regular basis?

norma2's picture
norma2
Posts: 486
Joined: Aug 2009

So glad to hear the great news!!!

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

happy for you!!

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Jill,

Can't ask for anything better with those results....enjoy dancing NED~

Woohooo

Susanna23
Posts: 66
Joined: Dec 2010

Dear Jill
So pleased to hear your news - it inspires the rest of us!
Thanks for letting us know
I'm stage Ia MMMT (uterine carcinosarcoma) currently NED and doing a lot of things recommended on your nutrition thread. Next checkup October 18 and I am already a little anxious I must admit.
Susan

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

I understand feeling anxious weeks in advance of your checkups; unfortunately, there is no real way around this. You are, however, incorporating nutritional approaches to combating this beast. I believe those approaches work! Best of luck to you, and thank you for your good wishes.

Jill

Double Whammy's picture
Double Whammy
Posts: 2295
Joined: Jun 2010

Hooray and all that.

Suzanne

Kaleena's picture
Kaleena
Posts: 1117
Joined: Nov 2009

Jill:

I am soooo happy for you. I know
how waiting for an appointment can be. I am happy
for your good news and for sharing it with us!

Keep smiling!

Kathy

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

Great news!

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

WONDERFUL NEWS! You did (and are doing) everything you can to beat this thing, and I believe and hope YOU can believe that you are IN THE CLEAR, CURED. Even at Stage 1a, you did aggressive adjuvent chemo and brachy, and then followed that up with rigorous attention to a healthy diet. You've read the statistics; your chances of recurrence are so so tiny that you shouldn't waste a single moment of worry on that.

LIVE, Jill! Allow yourself to take it in that you have BEAT THIS, and feel that joy and bliss to the bottom of your soul. In your shoes, I would SOOOOO turn my back on my 'cancer girl' personna and recapture my old life with all the vigor I'd invested in my cancer battle. I wouldn't wait a year, two years, 3 years, waiting for the other shoe to drop, unable to let it go. I'd slam that door shut and RUN and jump for joy, and start being the 'old me' again NOW.

Please take that as heartfelt from someone in a very different place in this journey. I see you ladies in remission, and I am in WONDER that you are here posting, when you are healthy enough to be doing ANYTHING YOU WANT! I spent my brief remissions running around Europe and the Caribbean like a half-crazed fool in my dilerious bliss of recaptued health, too busy LIVING to even check in here. I got my heart broken again when my cancer returned, but I would NEVER trade those months of intense joy for anything. I BELIEVED; and I want YOU to believe, so that days and weeks and months go by and cancer never enters your mind.

The women that started my cancer journey with me in 2008 and never recurred after their initial adjuvant (Deanna, ShortMarge, & Peggy Albers) never post here anymore. They're back working and living; cancer a distant memory easily shoved aside for the more immediate things that life brings. I still hear from them when they have their check-ups, letting me know they're still cancer-free. But their lives aren't dominated by cancer at all anymore. THAT's what I want for you ladies in remission: LIFE. I want that for all of us, but for those in remission it is so acheivable that it just seems WRONG to not reach out and accept your prize. ((((Hugs))))

lkchapman's picture
lkchapman
Posts: 105
Joined: Jan 2011

Linda, thank you! Your post to Jill could not have come at a better time for me, as I wait impatiently to leave for my 4 month checkup with my oncologist. I realize I have been wasting so much of my life waiting for the "other shoe" to hit the floor when I could be enjoying my remission with abandon. I'm going to print out your message and post it on my refrigerator where I can see it every day!

God Bless You!
Laura

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

You have given me very good advice, and I WILL heed it in time. I have never stopped embracing life. Even when I was sitting in the cancer center hooked up to chemo drugs, I was thinking about where I wanted to have dinner afterwards and who I should invite to join me. On my good days between treatments, I walked for miles and explored all of the neighborhoods in Brooklyn. And now, almost three and one-half years since my surgery, I am almost completely back to my usual activities. My time on these boards now is mostly for the purpose of checking in with friends, to try to give support to people just starting this journey, or to share information with women who are interested in an anti-cancer diet approach.

How I wish, though, that I were easily able to push cancer aside and have it be only a distant memory. Yes, I am in remission, with a good chance of being cured; but the cancer experience turned my world upside down too and scared me to my core. I KNOW that I am one of the lucky ones, that statistics are in my favor; and often I feel that I have no right to be afraid. But I am still dealing with the fallout, and I still need time to find the delirious bliss of recaptured health. I KNOW that I am coming to the end of my grieving process; but this process has phases and takes time no matter what the ultimate prognosis. We are all different in how long it takes us to process experiences and put them behind us.

I'll never be the old me, but that may not be a bad thing. Because of my diagnosis, I have found ways to become healthier than I have ever been in my life. I am a better friend, more compassionate, and with more life-affirming priorities. I will always enjoy my life. This grieving process, which I hope to end soon, has been absolutely necessary for me; and I am glad that I was able to go through it in my own time.

I hesitated to share these feeling here, given the experience of many of the women on this board. However, I want women in my shoes to know that it's ok to be scared, to grieve the loss of innocence, and to be comfortable coming here for support. Our chances for remission may be pretty good, but that doesn't mean that recovery from the experience is always lightning quick.

You will likely see less of me here now. I have pushed aside many things that I need to return to now. Heartfelt thanks to everyone kind enough to respond to my news.

(((Hugs)))

Jill

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

My longest remission was 5 1/2 months; for me this journey has been one of almost constant treatment. So from my perspective, remission is a place of bliss, perhaps because I have so little personal experience with it. In my longing eyes, remission is the BEST, a 2nd chance, and quite possibly the VICTORY for so many of you who will never recur. I want it to be like that for you; that's all. I want you to have come through this unscathed, wiser but LESS afraid of anything life can throw at you, because you've walked through hell and back already and lived to tell about it. My advice comes from a sincere place. In my eyes you seem whole and strong and capable of leaving this awful chapter of your life behind. I know you're close. I have such immense respect for you, and confidence in you. ((((Jill)))

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

immense respect for you, too, Linda; and I understand your perspective. Thank you for advice that I KNOW was absolutely sincere.

With caring,

Jill

california_artist
Posts: 850
Joined: Jan 2009

I know that one of the main reasons I go on the board is wholly altruistic, as I would like to offer the women on the board the very best shot at not having a remission and I don't feel the standard treatments without diet and lifestyle changes are as effective as with the changes. I believe that you are of the same or similar mind set. That to keep out of the pool where remission awaits one even as long as five or six years down the road, we do need to be aware of how we are living on a daily basis.

Nearly all research shows that diet and lifestyle changes have an enormous effect of how well one does, both in regards to getting cancer in the first place and remaining in remission. I post all information I can find on how to enhance chemo and radiation treatment so that those may be most effective. I believe you post for the same or similar reasons.Doctors are very busy in their day to day practices and are not always on top of the latest information, so when I post here, women have the opportunity to bring new treatments to the attention of their doctors. I believe that some of you have already had your treatments changed because of some of your own research.

I really think it's beneficial to everyone to have the most and latest information available to have the most positive outcome. And I certainly have an hour or two to give to welfare of whomever it may help. As a case in point, the AACR 2011 post, all 85 pages of it, while I haven't read the whole thing is full of current information on research and treatment options. Lots of wonderful photos and illustrations, charts. Give it a whirl and see if there is something there that might be of help to any of you.

In love and caring,

Claudia

bots's picture
bots
Posts: 53
Joined: Sep 2009

Jill, your note to Linda expresses beautifully exactly what I have felt and continue to feel. Thank you for your words.

I, too, love Brooklyn. My son, daughter-in-law, and one-year-old grandsome live in Park Slope. What a wonderful place to walk and poke around! I never thought I would find a place I liked as well as Berkeley, but Brooklyn is that place.

I am so glad your appointment went so well, and may this be the end of UPSC for you! I wish it could be so for everyone here.

Best,
Bots

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

Thank you for your words. It's ok to feel whatever we feel, and I believe that I can continue to be vigilant about my health/diet and still live LIFE with capital letters.

Park Slope is a wonderful community, and I do so much of my socializing there--it's walking distance from my Carroll Gardens neighborhood. I remember Berkeley from a long-ago visit, and I loved it there.

Your profile picture is so sweet--best friends; we all need them. Yesterday was my dog, Trixie Delight's, ninth birthday. She had extra walks, treats, and cuddles; and friends called and sang "happy birthday" to her. I think she was pleased.

Regards,

Jill

lilac1212
Posts: 6
Joined: Sep 2011

Hi! I am a new member. Had surgery 3 weeks ago and will be heading in to radiation treatments soon. Is your anti-cancer diet somewhere in these postings? Thank you!

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

This was posted a while ago, but it is a good introduction to the diet. Also, I would suggest using the search option to find more information on the anti-cancer diet. Good luck!

Incredible lecture given by Servan-Schreiber at UCSF. Discusses the studies and perspectives of why oncologists say what they say, dismissively, about diet and exercise. His arguments backed by science. A must-see!

Natural Defenses in Preventing and Treating Cancer - UCtelevision
http://www.youtube.com/watch?v=XaDt3AJQ98c

(28:20 in) “…For the last 40 years, all of oncology has been focused on destroying cancer cells….We spent between 150 and 200 billion dollars on cancer research in the last 40 years and we’ve improved the median survival of metastatic cancer, which is really the only one that kills you, by 3 months….So maybe we’re not pursuing quite the right roadmap. And what [I and others are] saying…is that yes it’s great to kill cancer cells but obviously it doesn’t seem to be enough. It is important, at the same time, to strengthen the body’s ability to resist cancer by creating an inhospitable terrain to cancer growth. And you can do both at the same time. This is not about alternative medicine.”

minniejan
Posts: 88
Joined: Dec 2010

Jill,

Congrats on remaining NED! Wonderfully upbeat news! Thanks for sharing with the rest of us. I went for my 6 months "out of chemo" checkup yesterday. Awaiting results right now. I totally understand the angst leading up to these checkups. Guess it never goes away.

MinnieJan

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

What did your doctor say? Your internal is generally the most important part of the exam for women with our stage. My expectation is that you are just fine!

As for the angst, I thought it would lessen by now. Guess not.

Jill

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

Jill, I am going to keep bugging you.
Angst? What is it? :)

Thank you!

minniejan
Posts: 88
Joined: Dec 2010

Hello,

I just received the CA 125 results, they are < 15. I had them done at the hospital this time, and they measure them a tad differently than when I have them done closer to home at the lab, which gives me an actual number. That is great news. The exam was okay, he did see some "inflammation" during the internal which was in the same area as the bit of bleeding I had a week prior to the appointment. I am still waiting the results of the pap of the vaginal cuff area. Hope to have that by the end of the week.

And I do not think I will ever be not nervous before one of these 3 month exams. Twenty years from now I will be the same emotionally I believe, but if I can put the angst aside between checkups I am happy!

MinnieJan

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

So glad to hear that your check up went well. I am sure the pap will be just fine too. It is normal to be anxious prior to those check ups but as time goes on it does get less stressful, I think!

You are doing great! Enjoy life!

Karen

lilac1212
Posts: 6
Joined: Sep 2011

Thank you so much; I will start my research!

lilac1212
Posts: 6
Joined: Sep 2011

Thank you so much; I will start my research!

lilac1212
Posts: 6
Joined: Sep 2011

Thank you so much; I will start my research!

lilac1212
Posts: 6
Joined: Sep 2011

Thank you so much; I will start my research!

lilac1212
Posts: 6
Joined: Sep 2011

Thank you so much; I will start my research!

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

What kind of test did the doctor do?
I am having my 3 months check up on November 2, and I would like to know what to ask for?

Felicitaciones!

Rewriter's picture
Rewriter
Posts: 494
Joined: Dec 2009

In answer to your first question about angst, I was having trouble letting go of the anxiety that always precedes my visit to the gyne-onc. There was no reason for that emotion, but my body had a problem letting go of it. I am much better now.

Your gyne-onc should know what type of checkup is right for you. For ME, my doctor lightly presses down on my pelvic area, gives me a thorough internal that includes a pap smear--or what is more accurately called a "vault" smear--and up until my last visit took blood for a CA-125 test. Since that number has been either 4 or 5 for almost 3 years, he no longer does that test. My suggestion, if you are anxious like I am, is to ask your doctor not to share results if they are perfect.

Best of luck, Fayard. As many of the women on this board suggested to ME, November is far away. Enjoy your life in the meantime, and try not to worry.

Hugs,

Jill

Kaleena's picture
Kaleena
Posts: 1117
Joined: Nov 2009

Fayard:

Here is something that you may want to do. When I was on my three month check up (I am on a 6 month check up now because I am so far away from my doctor [3 hours]), check with the doctor what tests you will be needing the future and if those tests will be required by your next visit. Ask for the scripts when you are there and then get those tests done prior to your next visit.

If you are like me, the worst part about testing is the waiting for the results or when you go to the doctor they want you to get tests like the next day or so and then you have to wait for the results. (That phone ringgy thing really used to get me nervous).

But if you get the tests right before your doctor visit, the results will be there and if you or the doctor has any questions you can iron them out right there instead of doing all that extra stuff. I think it made me feel more in control and somehow that calmed me down.

Here are the usual tests that they would usually do. CT Scan (or PET), CA125, other blood work, and then at your exam they usually do a PAP smear. So if you know you get a CT scan every six months, prior to that exam see if you can get your scan done before that appointment.

My best to you!

Kathy

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

Thank you for the advice.
I called my onco yesterday to let them know that I was coming in for a complete blood work the week before my appointment. I also told the nurse that I wanted to have PAP. When I finished chemo, my onco told me I would have a scan in a year.

Gracias!

JoAnnDK
Posts: 276
Joined: Jun 2011

I have my blood work results faxed to me and to my doctor. I get the fax within 18 hours, usually in the middle of the night. I started doing this when I was having chemo and did not want to drive all the way to my gyn onc (85 miles away) if my tests said that I could not have chemo.

Exams - both of my gyn ons do an vaginal and a rectal exam. Both the vaginal and rectal at the same time and then the vaginal exam by itself. Is this TMI?

RoseyR
Posts: 464
Joined: Feb 2011

Great news, Jill.

Nearly three years with no recurrence is a great achievement, and you are likely cured--at the least, at low risk of a recurrence.

Though I realize you are celebrating and looking forward, and i hate to take you back retrospectively for even a moment,
am wondering if you ever had to debate between brachytherapy and external radiation or if that decision was an easy one.

Great victory!

xo,
Rosey

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network