I found this article today and thought it provided an excellent overview of the treatment protocols and outcome for women with Stage 1 UPSC:
The link is:
really good article.
I had the earliest finding ever, and my case was presented. they had no recommendation for me in the Northeast cancer symposium so I asked my kids. Now, after reading your link, I'm very glad I chose to get the six rounds of chemo. yay! Thanks again
Thanks for posting!
With stage 1 UPSC has anyone been treated with three rounds of chemo (carboplatin and taxol) three weeks apart, with brachytherapy administered three times (total) between the rounds of chemo? As my oncologist said, hit it hard and hit it fast. I always read about sandwich protocol but not what I received.
I was recently diagnosed and began treatment for stage 1 UPSC in Aug. 2011. I have recovered nicely from my complete hysterectomy and am in my 1st of 3 chemo treatments with carboplatin and taxol. My hair is just starting to fall out, but my head is in a good place. I am happy to nail this fast and furiously.
I am scheduled for only 3 rounds and no radiation thus far. Is the CA 125 the only way they tell if it returns?
Its good to read those articles. I feel encouraged.
Betye, I was also diagnosed with Stage 1a UPSC, and I had only 3 rounds of the carboplatin. My oncologist said I would have three or four rounds, but if I started having a lot of neuropathy they would stop at three. Usually you will have CT scans once or twice a year, depending on your oncologist. That, the CA 125 and the physical exam as well as symptoms you may have such as bleeding or pain that, as my oncologist said, "Is there in the morning and is still there at night," are some ways one looks for a recurrence. Some of the other ladies might have additional information.
I am past the two-year point with no return, so things are good. I hope the same for you.
I am now trying to decide what to do next. My Dr reccommends the "sandwich tx" I was diagnosed with papilllary serous endometrial Ca in Nov 2011 I had robotic assisted complete hysterectomy with removal of fallopian tubes, ovaries, box of lymp nodes and part removal of the omentum. I am 67 and have other health concerns including asthma, diabetes, overweight I am worried that the treatment is worse that the chance of recurrance. DO you have any infor about recurrance with just the above surgery and no further tx? Any info would be appreciated. Thanks
I had the same concerns with other health problems also. I had to have open-heart surgery Sept 29,09 and the cancer surgery was Dec.5, 09. I also am over weight, with pill controled diabetes, not to mention high blood pressure. I have 1a and had all the surgerys,five rounds of radiation and six rounds of Taxol-carboplatan. So, so far I am 19 months clear. I will be 60 this month. The radiation and the chemo were not that bad for me. I even GAINED weight! I would do the treatment all over again if I had to. Hope this helps. Please contact me by e-mail if you want since I am not on every day.
Thank you so much for this link. I was diagnosed with Stage 1a UPSC in July, 2009. Actually, at the time of my diagnosis the stage was considered 1b, but it changed with the new FIGO ratings. I was treated with three rounds of chemo but no radiation. This month I passed the two-year post-treatment mark with no recurrence. My oncologist said that usually if one with Stage 1a UPSC doesn't recur in two years, one probably wouldn't have a recurrence. I still hold my breath every time I think about it, which is often. This review of studies will help me breathe easier.
If it helps you breathe even MORE easily, my oncologist agrees with your oncologist in thinking that Stage 1a UPSC that doesn't recur in two years probably will not recur. Best of luck to you.
had my robic surgery in nov dr recommend 4 rounds of chemo, I'm dreading it, but it was good to hear that some of you didn't have problems. going to have a port inserted this week. What I'm afraid of is infection, since the winters are so bad here in CT. I'm 63 and retired. Ironic, I worked as an outreach educator for a breast and cervical detection program for 9 years., educating women on getting their screening done. Never did I imagine that I would have uterine cancer. always have been healthy with no GYN problems at all.
imackie48--I live in NYC, where the winters are also pretty bad. While I was going through chemo, I avoided infection by eating well (adequate protein and iron are important); getting plenty of rest; carefully washing and/or peeling all of my fruits and vegetables; and staying away from crowds during my nadir periods (when blood counts are lowest between chemo sessions; your doctor will tell you more about when to expect this to happen). I did not have any problems while I was going through chemo other than the expected fatigue. Good luck.
Thanks for the article Jill.
Also, I might add, what a lovely photograph. It looks like you are enjoying yourself somewhere in Manhattan?
Thanks for the compliment on the photo; I had to replace it because I did not consult my friend about posting her picture on the Internet. Yes, a small group of us were having a lovely time at brunch in...BROOKLYN. Yes, Brooklyn has become a happening place. I lived in Manhattan for about 35 years; but now when I am in "the city" and travel back home, I am soothed by the quiet and the green grass and flowers. Plus, all of my neighbors know who I am; whereas, in the Manhattan building, people lived together for years without knowing anything about each other.
I love the expression on your dog's face. Was he or she trying to understand what you were saying?
My Dog Misty turned 1 yr old in June. She just loves to play and be happy as you can see on her face. She's a good dog.
I hope to get to NY soon. My husband and I usually make a yearly trip
but we missed it this year. We live in a rural area but like to make the
Big City trip to see the sights!
My best to you!
The first two links are articles to understand more about UPSC & CA-125.
C:\UPSC\Frequently Asked Questions (FAQ) about the CA-125 Test good.mht
See (pp.4-6) in the article. Even though it is for early stages, it has a good background of UPSC and the treatments that are being considered for women in general. This is the treatment that I had at MDA.
I have found these articles are helpful in understanding stages in UPSC.
This is a really good attempt at rounding up all the research done on stage one over the years.
All 300 plus ladies over ten plus years.
There is something about reading these studies that makes me feel like I'm watching a Wimbeldon tennis match while putting together a jigsaw puzzel on the side.
In one of the studies I was reading
" The majority of the patients (19/29) recurred in the abdomen, vagina, or pelvis (66%"
I nearly jumped out of my chair as I read the last word. Blinked twice and thought
"I didn't know MEN could get pappillary serous!"
I had to reread it and ...well ...
I misread the last word.
ya know, Grace. Even before I read your last sentence, I had to re-read those stats!!! I think I read it the same as you!!! Laughter fights cancer too!!
Take care. Mary Ann
Sleem, When you had your treatment at MDA, did you by any chance know Dr. Liz Han? My oncologist retired last year and Dr. Han replaced him. I like both doctors but they are very different in their approaches.
You read my mind. I got such a big laugh I had to share it . I then laughed some more. The real life experince showed me the importance of laughter in the midst of such serious study.
Later I got embarraced and was afraid some might find it offensive.
They have Yoga laughter in my town. I just have not gotten up the courage to check it out.
Sleem your first link does not work. I did a bit of fiddling and I belive I found it?
Laughter yoga is a great thing!!! I need to get back to that class. With all the talk of prevention and treatment of cancer, I think laughter should be on that list!!
Best to you. Mary Ann
I was close though. ;-) I tried to edit your name but its too late.