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To :Linda P.

cookie1948
Posts: 79
Joined: Feb 2009

I want to check in and see how u are doing Linda. I wrote in a long time ago and my mom at 85 had total hysterectomy due to uterine serous papillary cancer. I just wanted to know how u are and ask about your remission or what is it NED? Take care and God Bless all of u.

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lindaprocopio
Posts: 2022
Joined: Oct 2008

I feel good, with some lingering fatigue from my 8/26 radioembolism treatment, but overall my digestion is back to normal and I am back to my busy life. I haven't been in remission for well over a year and I don't think remission is even in the cards for me anymore, short of a miracle. But that's okay; I am very good at living a rich full life between treatments and have been very blessed to have no long-term side affects even after all of the chemo amd radiation I've had. I have fairly extensive metastisis to my liver, but am hopeful that the radioembolism I completed this spring and summer will knock those tumors back and buy me some more time. It's hard to believe I am as sick as I know I must be, as I feel pretty good practically all the time, but my entire 3-year cancer journey has been like that. My CA125 is over 11,000, which is insane I know. And even with that, cancer remains just an unwelcome interruption in my busy happy life. A year has past since my statistical 'expiration date' and I am optimistic that I can continue to beat the odds a while longer. I am at peace and happy.

cookie1948
Posts: 79
Joined: Feb 2009

Linda,
I just saw your post and it's like this "thing" can't and will not take over. I am glad to hear you are doing well right now. I do wish you would forever be NED. My mom will be 88 in October, and so far so good. She has other health problems and we are hoping the cancer will not return, so she is hitting the 3 yr mark pretty soon. She will not do chemo anyway and had none. In your case you are young and a fighter and just an all around remarkable person. I had to ask as u are an inspiration to all and without you i didn't even know what this cancer was and neither did my mom. Of course she is "good" as she has lived her life she says, but if she can go longer, so be it. God Bless you and all on this website.
Fondly,
Linda aka Cookie

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lindaprocopio
Posts: 2022
Joined: Oct 2008

3 years NED is just wonderful for your Mom and she may never recur if she's made it this far. I'm so happy for you both.

I'm content and happy with my wonderful blessed life, and try not to dwell on my grim prognosis. I have everything that is good in life; I can't be greedy and ask for anything more. I know that my oncologist is as surprised (and pleased) as I am that I am still here on this earth and still seemingly healthy and living a vibrant life a year after I statistically should have passed on. He says it's my attitude, but I know that if attitude alone could save me, I would be immortal and we all know no one is immortal. My plan is to keep living until I'm not. Sounds do-able, right? ;)

All we can do is try and give our bodies their best chance to keep toting us around awhile longer, and be grateful and at peace when it's time to fly fly away.

cookie1948
Posts: 79
Joined: Feb 2009

No wonder u are doing so well, it's your attitude and acceptance of whatever comes your way. I CANNOT believe my mom is still doing ok, altho her stomach is huge because after the surgery she developed a huge hernia. She will be 88 next week and is dragging this huge thing around but the oncologist said that hernia surgery is too big a thing to do at this point. I feel bad for her, but being NED sounds good. She had no chemo or radiation and at this point she would not. She is tired but look at her age. I do NOT know how she does it. the biggest thing is she is blind in the one eye and the macular degeneration is so affecting the other eye, so she bumps into things a lot and we have visited the braile institute, but getting back on the subject, it seems that this cancer is not so rare after all , is it? Are they making strides and will they in the next couple of years? I surely hope so. Too many women suffering. But YOU, you are an angel that came into so many people's lives. I wish you continued better health and more happy times to come. You are a fighter, but also at peace with your life and having a good time and making the most of it. God Bless You. I think you are one of the most inspirational people i have ever met and you have helped so many. Thank you, thank you. I will always "look" in on you. There are others i wanted to ask about, like Deanna andanother i can't remember. Have to look up. Actually there are several people i want to know how they are doing.
Keep on "keepin on", girl!!!

cookie1948
Posts: 79
Joined: Feb 2009

No wonder u are doing so well, it's your attitude and acceptance of whatever comes your way. I CANNOT believe my mom is still doing ok, altho her stomach is huge because after the surgery she developed a huge hernia. She will be 88 next week and is dragging this huge thing around but the oncologist said that hernia surgery is too big a thing to do at this point. I feel bad for her, but being NED sounds good. She had no chemo or radiation and at this point she would not. She is tired but look at her age. I do NOT know how she does it. the biggest thing is she is blind in the one eye and the macular degeneration is so affecting the other eye, so she bumps into things a lot and we have visited the braile institute, but getting back on the subject, it seems that this cancer is not so rare after all , is it? Are they making strides and will they in the next couple of years? I surely hope so. Too many women suffering. But YOU, you are an angel that came into so many people's lives. I wish you continued better health and more happy times to come. You are a fighter, but also at peace with your life and having a good time and making the most of it. God Bless You. I think you are one of the most inspirational people i have ever met and you have helped so many. Thank you, thank you. I will always "look" in on you. There are others i wanted to ask about, like Deanna andanother i can't remember. Have to look up. Actually there are several people i want to know how they are doing.
Keep on "keepin on", girl!!!

cookie1948
Posts: 79
Joined: Feb 2009

Did you say this cancer ocurred in your liver? I just don't understand this "thing" at all. They have given u a grim prognosis? How are your kids?

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lindaprocopio
Posts: 2022
Joined: Oct 2008

'Mets to the liver' is never good news, and always comes with a grim prognosis. But I have outlived my statistical survival time by close to a year, and have done some very cutting edge liver-specific radiation treatments this spring and summer that I'm hoping have bought me some more time on this earth.

I continue to feel really good. The grandkids had the day off school, so I took them to see The Lion King in 3D, then we got some lunch, did some book shopping, and stopped at a pet store to buy crickets for my granddaughter's bearded dragon. Once I got home I made a quick dinner for myself and my husband, pruned back one of the larger Rose of Sharons in my garden, and watched a DVD with my man. Maybe I am going to die sometime soon, but until that day, I am living a happy full life, and am peace with not being immortal. We're planning a trip to Ireland this spring, and maybe a mid-winter get-away to New Orleans.

You asked about Deanna: still NED and extending her 1st remission into close to 3 years now. Same with Short Marge. They don't post here anymore, as they have both returned to thheir pre-cancer lives, are working again, and put cancer behind them. But I do hear from them on FaceBook and by email and they are happy.

california_artist
Posts: 850
Joined: Jan 2009

It's really great that your CA-125 counts came down nearly 10,000 points possibly due to the treatment to your liver. Wow is all I can say. Read this over on the Ovarian Board. Good news. Keep us posted on how things are going.

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