CSN Login
Members Online: 6

Bloating and swelling

ldpettit's picture
ldpettit
Posts: 127
Joined: Apr 2011

Hi everyone. I haven't been on here nor posted in awhile. I have a question. I started A/C in March and it ended in June. In June I began Taxol/Herceptin combo. I have noticed a lot of swelling and bloating in my stomach. Since I haven't been on in awhile, maybe someone else has posted this question... or may have some info.

Is this common? Will it go away? Has anyone else experienced this?

I have spoken with my onc and she rushes me or blows me off and says to wait til the Taxol is completed. I've never had such bloating in my stomach and I swear I look pregnant... and I know I'm not.

Any feedback is greatly appreciated. Thank's much.

On a side note, the Taxol/Herceptin combo is not nearly as bad as the A/C combo. Sure I have some neuropathy, but it's bearable. My hair has even started to grow back. Not sure when I can color it, but man does it need it.

fighting4five
Posts: 71
Joined: Jun 2011

Hi...I am currently getting Taxol and Herceptin, Taxol weekly and Herceptin every 3 weeks I have had 7 taxol and 3 herceptins, 5 Taxol to go. I am also bloated in the stomach. I started chemo weighing 102lbs now im 112lbs. I get Dex8 as a premed with every treatment and was told that is what is making me bloat,however I noticed that it usually only occurs after my Herceptin.Drinking plenty of water helps however be careful not to drink to much or make sure you are drinking orange juice too because to much water can lower your potasium level. Im sure you already knew that since you have been through the A/C treatments.
I will start F/A/C combo on October 18th 4 treatments.I have done very well on the Taxol & Herceptin so far but the F/A/C im worried about.What kind of side effects did you experience while on A/C?
I hope the rest of your treatment goes well,I will keep you in my prayers.

Mary

ldpettit's picture
ldpettit
Posts: 127
Joined: Apr 2011

With the A/C I had fatigued from day 2-4. I also lost my hair on the A/C. Since this was my first chemo combo it was expected. Have you lost any hair with the Taxol?

After the A/C treatment the next day I would have to have a shot called Neulasta to help boost my blood counts. That shot hurt. If you haven't had to have it yet, I suggest taking an ice pack with you for after. Also, my MO suggested Claritan and a Tylenol prior to the shot to help with the discomfort. The bone pain you get from the shot lasts a few days and is painful, but bareable after awhile.

It took me about a week to recover from an A/C treatment. I didn't get mouth sores, but my taste buds were certainly out of wack and not much sounded good. I did find pickles to be a good thing to help stimulate my taste buds. Something to consider. What I wanted to eat after one treatment i didn't want at all after the next. So, be patient with yourself, but do your best to eat or at the very least drink a carnation breakfast shake or something like that.

Is this picture of you? You look SO young. What is your diagnosis?

I too only had 4 of the A/C treatments. I have to say, for me, it was the worst. Taxol/Harceptin combo has been SO easy compared to the A/C treatments. I pray your treatments go smooth and are easy to manage.

fighting4five
Posts: 71
Joined: Jun 2011

My hair started thining after my 4th taxol and thins more with every treatment.I think Im going to go ahead and shave it today.
I had a treatment of Tuesday and Friday I got bone pain and numbness on my left side only even my lips and tongue felt numb. It lasted all day Saturday and today I feel fine.
I have not had any naulasta shots yet so far my blood counts have been good.I have found that eating eggs peanut butter and orange juice every day really help with energy.Thank you for the advice.
That is me in the picture,It was taken in April a month before my diagnoses,which was stage 2 invasive HER2+ ER+ PR+ I am 38 years old. How about you? You look young yourself.
I pray that the rest of your treatment goes smoothly. Will you have to do ant hormone therapy after the chemo?

VickiSam's picture
VickiSam
Posts: 8272
Joined: Aug 2009

chemo regiment .. Taxotere --(extreme fatigue, fainting, blood blisters on my feet, hands -- along with daily a bloody nose) dense chemo given .. my choice for my diagnosis ... I was switched to Taxol -- balance of my chemo cocktail was Carboplatin and Herceptin. So when I say I had just about every side effort know to mankind (my symptoms off 'Bell Standard Charts) -- I mean I had everything ...

Drippy water eyes, my nose dripped uncontrollably for 7 months -- I am sure people that did know my circumstances -- that I was a 'coke head'.

did I mention my swollen ankles, feet and hands -- which all lasted months .. and I mean months after my last chemo treatment ..8 to 12 months to be exact. At 1 time my Oncologists PA -- tested me for 'GOUT'. Yep, idiots.

My Oncologist whom is very well known at UCLA, Published and Teaches brushed me off like a pair of old filthy dirty socks. It was not until my 2nd ER visit that I demanded, yes, demanded that he be called in. After a 2 a.m. call down to ER, to view me in full chemo mode side efforts -- did he start to listen to me .. Now, my 3rd ER visit == and my husband pressure to call him in yet again, did my Oncologist take what I said -- seriously.

Do not allow anyone to brush you off .. especially if you are having a side effort from chemo infusions -- THEY ARE REAL!!!!!! Call PA, Oncologist or an Associate within chemo center ...

Good luck, and let us know what happens...

Vicki Sam

ldpettit's picture
ldpettit
Posts: 127
Joined: Apr 2011

THANK YOU Vicki... I see the MO again tomorrow and WILL make her sit with me this time and take time. I'm SO tired of her giving me 3-5 SECONDS only to bill my insurance sky high and leave me feeling like my issues do NOT matter. Every since her AMAZING PA left her office she has been short, curt and impatient. Ridiculous. I haven't changed Dr's because of the fact I have been weekly on the Taxol/Herceptin combo and didn't have the energy to go elsewhere. 2 more of this combo and she may be seeing my rear end as it leaves her and her nasty front office manager for good. UGH!! Why is it we have to advocate, advocate, ADVOCATE for ourselves constantly...

I'm off my soap box now... lol

I also find my teeth hurt after the blood boost shots and have had increasing acid reflux lately. Good times... :)

How are you doing these days Vicki?

debi.18's picture
debi.18
Posts: 849
Joined: Jun 2011

Thank you Vicki Sam for sharing about your bloody nose. I hadn't seen anyone else mention it and thought it was just me. I can't tell you how many kleenex's I go through a day....nasal drip is one thing, but the bloody nose drip has become very irritating! They say it's a side effect of Taxol. Oh well, just another day of lovely side effects~!

Hugs,
Debi

ldpettit's picture
ldpettit
Posts: 127
Joined: Apr 2011

I didn't have blood running out, but have, since being on the Taxol/Herceptin combo blood inside. I haven't noticed it lately. Not sure if it is because the weather here or what. Maybe I shouldn't jinx myself since I have chemo tomorrow. lol

Has anyone felt light headed at times? and/or dizzy? I do at times, but it isn't consistent.

jnl's picture
jnl
Posts: 3873
Joined: May 2009

I didn't have this, but, wanted to say that I hope you get better and that I will praying for you.

Hugs, Leeza

ldpettit's picture
ldpettit
Posts: 127
Joined: Apr 2011

I am HER2+ as well (honestly not sure what the ER and PR is... ugh - or maybe knew at one time and drawing a blank now... lol). I am 45. I was diagnosed January of this year. I had a double mastectomy in February and started chemo in March. I will have radiation probably October/November. It will be 5 days a week for 5 1/2 weeks.

I don't believe I will have the hormone therapy. I have 2 more Taxol/Herceptin combos, but will then remain on Herceptin until June 2012.

Keep me posted on how you are doing and if you have ANY questions, please do not hesitate to ask.

Lisa

Rague
Posts: 3310
Joined: Aug 2009

I didn't have any problems with bloating with either A/C or Taxol. Didn't have Herceptin as I'm HER2 Negative but am on Femara for ER+.

For me A/C was not bad at all - just a tired on days 2 - 4 which resting took care of and basically that was it - never stopped me from doing anything I wanted to do. the 12 weeklky Taxol was a whole other story - i was completely and utterly EXHAUSTED and could not sleep without pills the entire time - existed on either the couch in front of the TV or in bed.

Neulasta was not bad either for me - all it did was put me to sleep 2 hrs almost to the minute after injection for 2 hours.

I lost 45 lbs while on Chemo and rads - not from nausea - never had any but from loosing all sense of taste and appetite. Hubby had to call me several times a day to remind me to eat something.

Have you talked to your PC DR as the Chemo Dr is not listening to you? I'm 1 1/2 yrs out of last Rad so 'anything' that comes up I call my PC PA as she never blows me off and 'things' get checked out ASAP.

Remember - your experiences are yours and yours alone - just as each of us has our own experiences which are not exactly the same as anyone else's. Ask all the questios but there is no one answer to what each body will experience.

Susan

Hair - on A/C I lost 'head' hair, about 1/2 of lashes and brows - on Taxol ALL hair left. Finished Taxol Jan 28, 2010 finially had enough hair back that scalp showed some color ovr it in May 2010. I'm old (65) but have no white naturally - genetic on Daddy's side of the family LOL

ldpettit's picture
ldpettit
Posts: 127
Joined: Apr 2011

Thank you Susan. I haven't yet called my PC DR, but will do so if the MO doesn't do anything tomorrow when I go in for chemo. Thank you for that reminder... sometimes I forget he is still someone I can go to.

I have white hair growing (genetic on my mom's side). Surprisingly after the 2nd T/H combo my hair started to grow back. I need to color mine... I tried at home, but it came out like my skin color. Who knew my shin would be labeled "medium blonde".. LOL

Lisa

VickiSam's picture
VickiSam
Posts: 8272
Joined: Aug 2009

Never give in .. my motto .. which I pretty much had to eat my words -- as I contemplated quitting chemo, on two different occasion.

You are your own best ADVOCATE .. tired, sluggish, ready to throw in the towel .. Don't ... get mad, and get even..!! Chemo may of sucked the life out of you .. but, you will preserver -- you can get there to the finish line .. baby steps ..,.,

I at times found solutions to my side effort with my RN Oncology Nurse .. whom herself is a breast cancer Survivor -- she was great about passing along information, and remedies that she found worked for her during her chemo. In fact, she was the individual who suggested that I have my Oncologist called in to ER .. which of course, I did. She also suggested that I insist that the doctor take the time to address all my side efforts ... and offer me alternatives ..medication, anything.

Has anyone lost any toe nails or finger nails from Taxol?? I did 3 toe nails ...ridges on each and finger nails took about 8 months to clear up .. after chemo stopped.

Hang in there you courageous WARRIORS!

Strength, Courage and Hope.

Vicki Sam

ldpettit's picture
ldpettit
Posts: 127
Joined: Apr 2011

Vicki

I haven't lost any of those yet. However, I have watched my thumbs both turn a shade of purple/pink at the bottom of the nail and I do have the ridges. I have two Taxol/herceptin combos left. Honestly, I'm surprised they haven't come off yet.

Thank you for your encouraging words... Your such a blessing especially on a day when it may be tough. THANK YOU!!

Rague
Posts: 3310
Joined: Aug 2009

Had to laugh about toe nails turning color. 2 days after 2nd A/C I drove my first Powder Puff Mud Bog (Got 2nd). That night I had a had a big 'black' area on big toe. Before next A/C I showed it DR T and he wanted to know what I kicked. Apparently somehow during my runs I bruise it 'good'.

Actually I would have had problems with my finger nails if I hadn't used Nail Envy.

Susan

ldpettit's picture
ldpettit
Posts: 127
Joined: Apr 2011

NOW that sounds like an absolute blast!! Nail Envy... I will have to check it out. Thank you!!

pinkpalette's picture
pinkpalette
Posts: 112
Joined: Jul 2011

I am on the TCH combo. Taxotere instead of Taxol. Though we are all different, we are all fighting this beast the same. I am puffy and bloated too... I hate it. My hair is gone. Right now, my taste is pretty good, but after my treatment, everything tastes like garbage. My eye is nearly swollen shut, oozy, crusty and sore. My onc. gave me something for it and I'm not even sure it is working. He says it is because of the Taxotere, so be glad you are not on that one. I have three more treatments to go, then on to rads, with Herceptin until July 2012. I'm not really sure what SE's are from what, but I am looking forward to getting the TCH treatments over in October, and hope most side effects will go away. It must be absolutely wonderful to see your hair growing back. I can't wait for mine to start coming in again. Celebrate every moment, it is one more step to the new you. I wish you well as you continue your treatments, the worst parts are over and the best is yet to be.

hugs, pp

ldpettit's picture
ldpettit
Posts: 127
Joined: Apr 2011

Thank you for your post. I'm grateful for your encouraging words. ALWAYS needed!!

Your eye is swollen shut... that must be painful and adding insult to injury. If the meds aren't working ask if there is anything different you can try. Did you try a warm compress on it, by any chance? I haven't experienced it. I hope your eye gets better soon.

You and I will be on Herceptin for almost the same length of time. I'm hopeful Herceptin is no big deal and that my heart holds up. How have your MUGA scans been? I have another one on the 21st and so far all is good. Thank God!!

Did you have the A/C combo at all?

When your hair grows back you will be excited! I was...mind you it is growing back with a mind of it's own though. LOL Hopefully it will be trainable when it gets to an inch. LOL I can't wait to NOT wear any head covering outside of the house. That will be an AWESOME day! For now, I'm just too chicken to go al natural...

Thank you for your post and I pray for smooth roads ahead for you!

mariam_11_09's picture
mariam_11_09
Posts: 693
Joined: Nov 2009

I was on the same shedule in the same months as you last year. Currently I am done. I had the same problem with an incredibly bloated and would pass very horrible gas particularly in the days following the T/H infusion. My stomach (the top part) would protude and feel very hard. I also had acid reflux and was careful with what I ate. In addition I did have diarrhea for a couple days after T/H. I carried pept bismal and immodium with me all the time.

However I do have to admit a week after finishing chemo, it all went away. It was quite miraculous, it was like I never had a stomach problem. The bloating, the gas and the acid reflux cleared up very quickly.

I am not sure if you can take this while on T/H but I do know that activated charcoal helps with bloating and gas. You can ask your Onc. I didn't take while on the T/H because I compleletly forgot about it. I did take L-Glutamine that is supposed to help the lining of the stomach but I don't think it did much, maybe once I was done with chemo.

Sometimes to the Oncs don't pay much attention to this because there isn't much they can do and they are just trying to get you through the chemo. If you continue to have problems post chemo then your Onc. will probably refer you to someone.

I wish you well. Hang in there, it sounds like you might be close to being done.

ldpettit's picture
ldpettit
Posts: 127
Joined: Apr 2011

Thank you... I too have been havind acid reflux. Just started the last week. So having to watch what I eat as well. Of course, it slipped my mind to mention it to the ONC yesterday. I wrote down everything else on my, reminder, sheet. lol

I have one more T/H combo next week. WAHOO!! Then I have Herceptin every 3rd week until June of 2012. I will start rads in October I believe. That will be 5x a week for 5/12 weeks. I'm hopeful those aren't too bad and don't cause too much fatigue.

Thanks for the tip on the activated charcoal. Hadn't heard of that before.

Congrats on being done with the chemo!! That has to be an incredible feeling!!

Lisa

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Congrats to you Lisa on almost finishing T/H! Be sure and post so we can all celebrate with you!

Hugs, Kylez

ldpettit's picture
ldpettit
Posts: 127
Joined: Apr 2011

Kylez

I sure will... I can't wait to celebrate myself. Hard to believe in March when I started my first A/C it seemed FOREVER before I would get this far out. I know I still have Herceptin until next year, but man it feels great to hit one hurdle after another.

Thank you!!

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network