Sep 03, 2011 - 2:37 pm
I have read that many of you have had stretches done to the esophagus. We mentioned it to our doctor during the visit from he** last thursday. He told us that Lee does not need it. He did not give any reasons, and since the visit was going badly to begin with, I didn't push it. As of this time, the results of the CT showed that, to quote directly from the report that we were given ....
"The distal third of the esophagus is diffusely thickened with soft tissue nodularity measuring up to 1.0 cm. This has progressed since the previous exam and may represent paraesophageal lymph nodes or exophytic tumor."
I have no idea what that all means, but what I do know is that he can only eat cream soups, and a few types of cereal at this point. That's all..... And on top of that, when food is getting 'stuck' he is not able to feel it anymore, until it reaches his windpipe and he starts choking. It used to be that he'd feel food stuck and could simply 'cough' it up. Now, he almost stops breathing and I have to pound his back to get the stuff out.
Any idea why he would not be ready for an esophageal stretch? We seem to have a history with our doctor saying that we don't need / aren't ready for all the treatments that we ask about, when clearly we are! Could it be because of the recent feeding tube placement? He was instructed to still try to maintain at least 500 calories per day by mouth, but we're lucky if we can get 200.
As always, thanks for your input!