now what?

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Nana2
Nana2 Member Posts: 255
Jim's last scan showed no significant change in liver mets, several small lesions now on lungs. He was on Vectibix and having 15 or more bm's daily, small amounts always urgent, lots of times accidents. We complained to the Doctors and they took him off vectibix to give his system some heal time and after two more weeks of the crazy bms we called and complained again and they sent us to the ER. Found out a few hours later he has c-dif an intestinal infection usually caused by antibiotics. He was on an antibiotic for his skin while on the Vectibix. We are discouraged. We're talking about a totally non toxic route but we're scared to death to do that. Got the book "Outsmart Cancer" and are looking at some of the suggestions. It's so hard to know what to do, more chemo? Alternative potions? Our brains hurt! Someone just convinced me to buy a ton of suppliments which I will list in case you all have any advise. Has anyone else read that book?
Anyway, here are the suppliments this lady advised for Jim.
Cellular Vitality
Intenzyme Forte
Vitanox
Hoxsey
Catallyn
Organically bound minerals
Leaky Gut
Primal Defense ultra
Chlorophyll Complex
She told us to juice greens once a day quit meat,sugar,dairy and gluten.
a different nutritionist also said he should take saccharomyces boulardii for the c-dif and that he needs to do protien shakes
any thoughts on all my crazy rambling today??? We just don't know what to do next
thank you friends,
April

Comments

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
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    Dear April
    So sorry to hear that Jim is having such a tough go of it.

    Lisa42 has listed the suppliments she is on so I am sure she will chime in.

    John23 has lots of links and info on his blog page here about TCM.

    I am sure Scouty and Emily would be glad to offer you info on juicing.

    I guess the only advice I have about the suppliments is to not buy them before checking out what they are supposed to do. Perhaps there is a Nuropath in your area who might offer you some advice.

    Hoping that you can find the right combo to help your hubby.

    Hugs,

    Marie who loves kitties
  • John23
    John23 Member Posts: 2,122 Member
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    Wow.

    Re:
    "She told us to juice greens once a day quit meat,sugar,dairy and gluten.
    a different nutritionist also said he should take saccharomyces boulardii
    for the c-dif and that he needs to do protien shakes"


    Does that sound expensive, or what?

    "saccharomyces boulardii" is yeast. You can buy it under that name given, for the
    "Holistic price" at the "health shoppe", or grab some at Walmart.... It's yeast,
    and a great probiotic to get the intestinal flora going...

    Personally, I would -not- quit sugar. I would do my best to quit "high fructose",
    or any sugar substitute, but not genuine cane sugar, beet sugar, or any sugar
    that has not been made to be "sweeter" than it is naturally.

    Trying to fool mother nature, by taking in something that's going to appear
    to the system as "more" than what is really going in, is going to cause a problem.
    I can not for the life of me, understand why that concept eludes basic logic.

    If the system (brain) thinks the body is getting a large amount of glucose,
    it will generate an appropriate amount of insulin to offset the imbalance.
    Do that often enough, and "hello diabetes".

    High fructose corn syrup, Stevia, and/or any other pseudo-sugar, is damaging.
    It is putting into the body, a substance that appears as a higher amount of
    glucose than is actually being taken in.... You're gonna' piss mom nature off !

    Meat has protein and a whole hoard of enzymes and nutrients that we need
    to survive. So why stop eating meat, and start taking factory manufactured
    supplements..... to add what we are not getting from eating things that we
    normally would be eating if in the wild? Does it really make sense?

    A well-rounded diet is 1,000% better than a well-rounded box of supplements.

    That's my two centavo's worth....

    Best wishes for good health!

    John
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    Options
    John23 said:

    Wow.

    Re:
    "She told us to juice greens once a day quit meat,sugar,dairy and gluten.
    a different nutritionist also said he should take saccharomyces boulardii
    for the c-dif and that he needs to do protien shakes"


    Does that sound expensive, or what?

    "saccharomyces boulardii" is yeast. You can buy it under that name given, for the
    "Holistic price" at the "health shoppe", or grab some at Walmart.... It's yeast,
    and a great probiotic to get the intestinal flora going...

    Personally, I would -not- quit sugar. I would do my best to quit "high fructose",
    or any sugar substitute, but not genuine cane sugar, beet sugar, or any sugar
    that has not been made to be "sweeter" than it is naturally.

    Trying to fool mother nature, by taking in something that's going to appear
    to the system as "more" than what is really going in, is going to cause a problem.
    I can not for the life of me, understand why that concept eludes basic logic.

    If the system (brain) thinks the body is getting a large amount of glucose,
    it will generate an appropriate amount of insulin to offset the imbalance.
    Do that often enough, and "hello diabetes".

    High fructose corn syrup, Stevia, and/or any other pseudo-sugar, is damaging.
    It is putting into the body, a substance that appears as a higher amount of
    glucose than is actually being taken in.... You're gonna' piss mom nature off !

    Meat has protein and a whole hoard of enzymes and nutrients that we need
    to survive. So why stop eating meat, and start taking factory manufactured
    supplements..... to add what we are not getting from eating things that we
    normally would be eating if in the wild? Does it really make sense?

    A well-rounded diet is 1,000% better than a well-rounded box of supplements.

    That's my two centavo's worth....

    Best wishes for good health!

    John

    diet and supplements
    Pulling out the junk and improving food quality certainly is a major step. Sometimes there are huge discussions as to what is junk and what constitutes quality foods.

    "Supplements" don't have to be expensive, societially we're just set up wrong to maximize sales of unhealthy stuff, and individuals frequently don't buy supplements wisely, either. (Excess) sugars are cheap (evil) supplements, ya know, where vitamin C should never be more than twice as expensive. Interestingly, we don't buy sugar anymore, but we now handle vitamin C by the kilo, and my wife doesn't have allergies anymore, among several benefits.

    A lot of people have digestive problems like damaged villi and brush borders, inadequate stomach acid, pancreatic enzymes or bile flow, and don't digest their food well without fixing the problem, or replacement therapy. Concentrated, easier-to-digest, or predigested foods like supplements are sometimes necessary to attain a blood level or functionality even with a much improved diet. Some of the specialized, high dose nutrients modulate pathways as do the TCM herbs.

    We try to do both diet and supplements. The result seems striking to my wife's friends, and her surgeons.
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    Options
    tanstaafl said:

    diet and supplements
    Pulling out the junk and improving food quality certainly is a major step. Sometimes there are huge discussions as to what is junk and what constitutes quality foods.

    "Supplements" don't have to be expensive, societially we're just set up wrong to maximize sales of unhealthy stuff, and individuals frequently don't buy supplements wisely, either. (Excess) sugars are cheap (evil) supplements, ya know, where vitamin C should never be more than twice as expensive. Interestingly, we don't buy sugar anymore, but we now handle vitamin C by the kilo, and my wife doesn't have allergies anymore, among several benefits.

    A lot of people have digestive problems like damaged villi and brush borders, inadequate stomach acid, pancreatic enzymes or bile flow, and don't digest their food well without fixing the problem, or replacement therapy. Concentrated, easier-to-digest, or predigested foods like supplements are sometimes necessary to attain a blood level or functionality even with a much improved diet. Some of the specialized, high dose nutrients modulate pathways as do the TCM herbs.

    We try to do both diet and supplements. The result seems striking to my wife's friends, and her surgeons.

    What other options are you still having April?
    hugs.
  • Buckwirth
    Buckwirth Member Posts: 1,258 Member
    Options
    John23 said:

    Wow.

    Re:
    "She told us to juice greens once a day quit meat,sugar,dairy and gluten.
    a different nutritionist also said he should take saccharomyces boulardii
    for the c-dif and that he needs to do protien shakes"


    Does that sound expensive, or what?

    "saccharomyces boulardii" is yeast. You can buy it under that name given, for the
    "Holistic price" at the "health shoppe", or grab some at Walmart.... It's yeast,
    and a great probiotic to get the intestinal flora going...

    Personally, I would -not- quit sugar. I would do my best to quit "high fructose",
    or any sugar substitute, but not genuine cane sugar, beet sugar, or any sugar
    that has not been made to be "sweeter" than it is naturally.

    Trying to fool mother nature, by taking in something that's going to appear
    to the system as "more" than what is really going in, is going to cause a problem.
    I can not for the life of me, understand why that concept eludes basic logic.

    If the system (brain) thinks the body is getting a large amount of glucose,
    it will generate an appropriate amount of insulin to offset the imbalance.
    Do that often enough, and "hello diabetes".

    High fructose corn syrup, Stevia, and/or any other pseudo-sugar, is damaging.
    It is putting into the body, a substance that appears as a higher amount of
    glucose than is actually being taken in.... You're gonna' piss mom nature off !

    Meat has protein and a whole hoard of enzymes and nutrients that we need
    to survive. So why stop eating meat, and start taking factory manufactured
    supplements..... to add what we are not getting from eating things that we
    normally would be eating if in the wild? Does it really make sense?

    A well-rounded diet is 1,000% better than a well-rounded box of supplements.

    That's my two centavo's worth....

    Best wishes for good health!

    John

    To those who are wondering
    John and I agree as often as we disagree.

    Life is like a box of chocolates.
  • laurettas
    laurettas Member Posts: 372
    Options
    John23 said:

    Wow.

    Re:
    "She told us to juice greens once a day quit meat,sugar,dairy and gluten.
    a different nutritionist also said he should take saccharomyces boulardii
    for the c-dif and that he needs to do protien shakes"


    Does that sound expensive, or what?

    "saccharomyces boulardii" is yeast. You can buy it under that name given, for the
    "Holistic price" at the "health shoppe", or grab some at Walmart.... It's yeast,
    and a great probiotic to get the intestinal flora going...

    Personally, I would -not- quit sugar. I would do my best to quit "high fructose",
    or any sugar substitute, but not genuine cane sugar, beet sugar, or any sugar
    that has not been made to be "sweeter" than it is naturally.

    Trying to fool mother nature, by taking in something that's going to appear
    to the system as "more" than what is really going in, is going to cause a problem.
    I can not for the life of me, understand why that concept eludes basic logic.

    If the system (brain) thinks the body is getting a large amount of glucose,
    it will generate an appropriate amount of insulin to offset the imbalance.
    Do that often enough, and "hello diabetes".

    High fructose corn syrup, Stevia, and/or any other pseudo-sugar, is damaging.
    It is putting into the body, a substance that appears as a higher amount of
    glucose than is actually being taken in.... You're gonna' piss mom nature off !

    Meat has protein and a whole hoard of enzymes and nutrients that we need
    to survive. So why stop eating meat, and start taking factory manufactured
    supplements..... to add what we are not getting from eating things that we
    normally would be eating if in the wild? Does it really make sense?

    A well-rounded diet is 1,000% better than a well-rounded box of supplements.

    That's my two centavo's worth....

    Best wishes for good health!

    John

    Thumbs up on this one!
    Interesting comments, John. I agree with the idea of getting as much of your nutrition from food as possible. Seems that is the way it is supposed to be. I'm sure though that for those whose digestive tract has been altered, that might be difficult at times.

    Love the comments on sugar! I didn't know about stevia, however. Knew that a lot of other sugar substitutes were bad.

    We eat a lot of meat--that we grow ourselves on grass--around here. My husband's blood levels are still in the normal range after four months of chemo and I just wonder if the protein doesn't help keep those levels up. I also just had a colonoscopy and had no polyps so guess the meat hasn't hurt me yet! My dad who doesn't like red meat, however, did get colon cancer so go figure!
  • 2bhealed
    2bhealed Member Posts: 2,064 Member
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    Dear April
    So sorry to hear that Jim is having such a tough go of it.

    Lisa42 has listed the suppliments she is on so I am sure she will chime in.

    John23 has lots of links and info on his blog page here about TCM.

    I am sure Scouty and Emily would be glad to offer you info on juicing.

    I guess the only advice I have about the suppliments is to not buy them before checking out what they are supposed to do. Perhaps there is a Nuropath in your area who might offer you some advice.

    Hoping that you can find the right combo to help your hubby.

    Hugs,

    Marie who loves kitties

    Second the motion
    Hi April,

    I hope you are under the guidance of a Naturopathic Doctor to help you navigate all the supplements and dietary issues. I worked with one as well as my TCM practitioner since they approached healing from different, yet compatible, protocols.

    I gather that getting off meat, dairy, sugar and gluten is allowing Jim's gut to heal. All items are very hard for our systems to digest and when we're dealing with colon cancer then you're pretty sure that the digestive system is not working properly.

    Juicing gives the gut a break flooding your system with live enzymes and easy-to-assimilate nutrients that are high density.

    Also, you may have been advised to take meat, dairy, sugar and gluten out because they are acidic and promote inflammation where as juicing greens will help to alkalize and calm down inflammation. Diseases are often caused by chronic inflammation and they just manifest differently with different people. I personally (obviously) would follow that advice you were given for now and see how Jim responds.

    I don't agree with John on this one--not when dealing with a health crisis. Take out the empty calories that have no nutritional value (sugar) and do nothing to promote health. The thing is, if one is eating a natural diet, then processed sugar is not a part of it. Jim will get plenty of natural sugars in real foods that have no added sugar regardless if it's turbinado, raw, organic, brown or powdered. We don't "need" it.

    Cutting out these foods temporarily can help to detox a toxic system as well. I say all this from personal experience and the energy boost that happens after cutting out these foods is nothing short of amazing. Dairy foods are mucus forming and when healing the gut you don't need the extra gunk in there.

    If Jim keeps meat in his diet, then getting organic grass-fed meats is key because they will not have the hormones and anti-biotics pumped into them that should be avoided at this crisis time. They are full of good fats too.

    Gluten wreaks havoc on the small intestine and can be a cause of intestinal cancer. When I dropped it from my diet the results were highly noticeable.

    I'm not real familiar with many of the supplements you listed except Hoxsey and Chlorophyll. I take digestive enzymes, but didn't know the ones you listed.

    I would hope that the supplements you listed are tailor made for Jim's condition and mine would have been different therefore I took different ones (?).

    I hope this helps.

    peace, emily
  • Nana2
    Nana2 Member Posts: 255
    Options
    spent today cleaning out
    spent today cleaning out frig and cabinets getting rid of processed food, sugar etc. The shelves were lookin pretty bare, so I went out and got stuff to fill them up. Fresh organic brocolli and green beans, celery, carrots, sweet potatoes, tomatoes, apples, some raw almmonds, almond milk, and some coconut milk vanilla non dairy ice cream. There is so much color in the frig now. Thanks for all the input.

    Hey, is popcorn okay? Ever?
    we love popcorn
    thanks all,
    April
  • Nana2
    Nana2 Member Posts: 255
    Options
    spent today cleaning out
    spent today cleaning out frig and cabinets getting rid of processed food, sugar etc. The shelves were lookin pretty bare, so I went out and got stuff to fill them up. Fresh organic brocolli and green beans, celery, carrots, sweet potatoes, tomatoes, apples, some raw almmonds, almond milk, and some coconut milk vanilla non dairy ice cream. There is so much color in the frig now. Thanks for all the input.

    Hey, is popcorn okay? Ever?
    we love popcorn
    thanks all,
    April
  • thingy45
    thingy45 Member Posts: 632 Member
    Options
    Nana2 said:

    spent today cleaning out
    spent today cleaning out frig and cabinets getting rid of processed food, sugar etc. The shelves were lookin pretty bare, so I went out and got stuff to fill them up. Fresh organic brocolli and green beans, celery, carrots, sweet potatoes, tomatoes, apples, some raw almmonds, almond milk, and some coconut milk vanilla non dairy ice cream. There is so much color in the frig now. Thanks for all the input.

    Hey, is popcorn okay? Ever?
    we love popcorn
    thanks all,
    April

    After my operation I opted
    After my operation I opted for a Naturopath and I am taking

    Pro biotic with each meal.
    I juice twice a day, carrots, celery, granny smith apple and any greens I can find, sometimes beet
    I take a licorice herb mixture
    I alo take a juice made out of 19 berries twice a day including the Acai berry.
    I use Manuka honey and for sweetner Agava nectar,
    I try to stay away from gluten en I take protein shakes with almond milk twice A DAY
    twice a week I treat myself to coffee and I try to stay away from alcohol, sometimes a little bit of red wine with lots of water.
    All on the advice of my Naturopath.
    So far I am doing great,I have lots of energy. This is my regiem and it works for me
    I hope this is of any help.
    Hugs Marjan