Sep 02, 2011 - 12:04 am
By way of background:
At each monthly exam and consult, my labs have been good and my pelvic/rectal exam has been clear.
I had a follow-up CT scan on Tuesday this week, ordered by the radiation oncologist in part to prepare for that form of treatment--expected to start later this month.
Instead, I heard from my gyn-onc tonight that the enlarged lymph nodes were still as bad, if not larger, and that I now have nodules, plural, in my lung (or lungs, I don't recall). The radiation seems moot at this point to all docs concerned. So the treatment my gyn-onc now recommends is Megace.
I am staggered, floored by this new bad news. I don't know much about Megace, except that I have gathered that hormonal treatments are not considered curative but palliative. Is that indeed so? Is it possible that Megace as a treatment can be measurably effective? My gyn-onc says she has many patients who have been on it for a "long time," but I didn't ask her for specifics. I see no point to that. What was estimated to be effective did not work for me.
I know that many of you valiant women posting regularly here are already dealing with this so-called palliative condition. I didn't expect to have to deal with it myself, at least not so soon. This is supposed to be a "garden variety" cancer, one that is easy to handle and treat. Ha!
More importantly, though, I am really not sure what to do next. Except, now I feel liberated in a sense to go whole-hog with the anti-oxidant diet and supplement regime--I held off during chemo, since that was supposed to be the way the chemo would be effective.
If anyone has experience with taking Megace that she wants to share, I would appreciate it. I did some searching of the older posts, but what I saw was pretty discouraging.
Thank you all in advance. I'm going off to cry some more tonight, and hope to be better prepared to face all of this tomorrow.