Aug 30, 2011 - 9:22 pm
Hi everyone. My father was diagnosed on April 26th with Glioblastoma Multiforme Grade IV and had an emergency craniotomy on April 29th where the neurosurgeon was about to resect about 93% of the tumor. The second tumor was in a location that the neurosurgeon felt was inoperable. He underwent radiation therapy (30 sessions) as well as chemotherapy (Temador) and had started maintenance chemotherapy. Last week, we found out that tumor had not only grown back but was larger than it was prior to his surgery. On last Wednesday, he started taking a chemotherapy drug named CPT-11 in the hope that this treatment will help shrink and/or stop the tumor from growing.
During a private conversation I had with my father's oncologist, I asked him to be honest with me and to tell me what to expect. His response was that we needed to start getting my father's affairs in order and that his prognosis is approximately 12 months from his initial diagnosis...which means he may have approximately 8 months left. He went on to tell me that Avastin along with CPT-11 would give him a greater chance in shrinking the tumor; however, because he's suffered from blood clots and is on a blood thinner, he can't give him the Avastin. Another factor against my father is his age. He's 67, and the oncologist informed me that patients over 60 do not do well with this cancer.
I'm not sure what to expect from all of this. I've moved in with my parents to help my mother care for my father, to drive them to his appointments, and to do whatever else is needed of me. It hasn't been easy, because, it's difficult to see him this way. He's not in any pain; however, he's lost lots of weight. I'm trying my best to handle things for my mother (deal with insurance companies, research all of the drugs and treatments he's been put on or currently undergoing, etc.); however, there is little information about what the patient goes through...especially once the tumor has progressed to the point where there is nothing left for the doctors to do. Can anyone offer advice or share their experience with me?