Just wanted to update everybody. My husband had HCC and had 2 Y90 treatments to shrink the tumors enough to get on the transplant list.
Once on the list he got lucky and had his transplant 2 weeks later. I was amazed at his recovery he was doing great. Then he started having some stomach pain and trouble sleeping.
He went for a check up 3 months post transplant the doctor pretty much blew off his complaints and increased his pain medicine told him to take 2 at bedtime to help him sleep. Told him he could return to work any time after 4 months and testing for cancer markers etc. would start again on at 4 months.
That was June 28th. He was back in the hospital on July 8th on the 11th they told us his cancer was back and it was in the new liver and had spread to his lungs. He was told he had months with treatment and weeks without and was being referred to an oncologist for treatment options and sent home on the 14th with stronger pain medication.
We saw the oncologist on the 18th our 36th anniversary. She said he didn't look like weeks it would be months but treatments would only be 1/2 the normal dose because of the anti rejection medicines. He ended up back at the er on the 22nd. The doctor said his lungs sounded fine and the pain was from the cancer and sent him home telling us to adjust the pain medication.
The night of July 30th he was up all night in pain and trouble breathing. I ended up calling 911 the morning of the 31st he was taken to the local hospital then transferred to the one where the oncologist was then transferred back to IU for the transplant team. The doctor came in on August 2nd and showed us the scans there was very little liver or lungs that was not cancer it was very agressive they told us we needed to contact hospice. He came home on the 5th and passed away on the 9th. It was only 4 weeks and 1 day from when they told us the cancer was back and 1 day before he was to start the post transplant testing. The doctors said they were sorry. No one should have to go through this. This just doesn't happen this fast etc. But it did and he is gone.