Ticked Off

cinnamonsmile
cinnamonsmile Member Posts: 1,187 Member
in Breast Cancer #1
I belong to breastcancer.org too. I was searching for an old post for someone else and found a respnse to me on my DCIS. I had thought I had had her blocked, but for some reason she was unblocked and saw a post she had responded to me about. I had DCIS and a double mastectomy. Very very rarely it seems that women would need radiation after that. I sure didn't. For some reason, she told me that rads were necessary because she was figuring that I was an 8 on some vannuys rating scale. After I was degraded by a couple women who told me in private ims that I really couldn't relate to the other cancers cuz I "only" had DCIS, I removed all information regarding that in my profile. I looked up this Van Nuys thing. I really don't get where she is getting her info from about me, you have to know age, grade, tumor size etc. Hell, I don't even know my actual tumor size.
It just really irks me that she thinks she knows more than my surgeon and oncologists that I needed unnecessary rads.All my cancer was taken out and if the margins weren't clear enough, I know they would have told me. My surgeon takes quite an aggressive approach to any cancer (even more aggresive than my oncologist). I blocked this woman again but boy did I let her get under my skin...

Comments

  • grams2jc
    grams2jc Member Posts: 756
    #2
    So sorry you have had to put up with that
    I can't imagine anyone receiving ANY kind of cancer diagnosis and not feeling all of the fears and emotions that go with that word. That word holds so much power in our world, it turns our lives upside down and changes them forever.

    I am glad you got her blocked again and sorry that you had to put up with that nonsense, your treatment plan is between you and your physicians....I doubt that she had M.D. behind her name.

    Take care,

    Jennifer
  • Rague
    Rague Member Posts: 3,653 Member
    #3
    A few bad fruit spoils the bushel!
    I go there occasionaly - it's usually a "witch fight" with several who think they know more than any DR in the world. Definately (to me) not a place of healing and growth.

    Don't them get to you - they are just a bunch (not all at the site but the most boistrous, know everything ones) who make themselves feel like they are above everyone else with their little tirades.

    Ignore them!

    Susan
  • phoenixrising
    phoenixrising Member Posts: 1,508
    #4
    Yeah, it can be a volatile
    Yeah, it can be a volatile place to be. Esp. in the Alternative section...some good cat fights there....I use it for entertainment :)
  • cinnamonsmile
    cinnamonsmile Member Posts: 1,187 Member
    #5
    Rague said:

    A few bad fruit spoils the bushel!
    I go there occasionaly - it's usually a "witch fight" with several who think they know more than any DR in the world. Definately (to me) not a place of healing and growth.

    Don't them get to you - they are just a bunch (not all at the site but the most boistrous, know everything ones) who make themselves feel like they are above everyone else with their little tirades.

    Ignore them!

    Susan

    Thanks Rague. Yeah I have
    Thanks Rague. Yeah I have read their cat fights, but they are usually in forums I don't go to. I stick primarily to DCIS, Reconstruction alternatives, and a bit on the sugerical forum cuz they have PMPS thread going where I found quite a few women with it too. I sometime venture off into other areas, too, but I pick and choose to what I like, am familiar with etc.I usually don't get into the pettiness I see, but this woman was in my business, you know? And you are right, it didn't "feel" like she was doing it to help me but be contradictoy, toot her own horn and stir things up with me...It feels good to get it off my chest here, lol, where I know it wont become a big thing with a bunch of people arguing.
  • epark
    epark Member Posts: 339
    #6
    phoenixrising said:

    Yeah, it can be a volatile
    Yeah, it can be a volatile place to be. Esp. in the Alternative section...some good cat fights there....I use it for entertainment :)

    i was there first
    Before coming here I found breastcancer.org.. i always end up depressed when i got off there...happy to find this site....stay strong my friend and the only people who has a say so in this is god, you, your husband and doctors...thank care and god bless
  • cahjah75
    cahjah75 Member Posts: 2,631
    #7
    Try
    to ingnore this person posting. We all come here for encouragement and information but we are not supposed to ever infer that we know more than anyone's drs. We are all different. You can come here and vent about jerks like that. We'll listen.
    {{hugs}} Char
  • mamolady
    mamolady Member Posts: 796 Member
    #8
    I'm sorry
    It never ceases to amaze me how ignorant people can be.... The only saving grace it that I am also amazed at times by the compassion others show. Try not to let the ignorant people win! There are way more caring, compassionate, warm and friendly people.

    Cindy
  • dbhadra
    dbhadra Member Posts: 344 Member
    #9
    mamolady said:

    I'm sorry
    It never ceases to amaze me how ignorant people can be.... The only saving grace it that I am also amazed at times by the compassion others show. Try not to let the ignorant people win! There are way more caring, compassionate, warm and friendly people.

    Cindy

    This site is great
    And people here are so supportive. I am not sure if it is the same site you mentioned, but I had gone to another site and came back so depressed! So now I stick with the winners-you guys!

    Laura
  • renee616
    renee616 Member Posts: 181
    #10
    dbhadra said:

    This site is great
    And people here are so supportive. I am not sure if it is the same site you mentioned, but I had gone to another site and came back so depressed! So now I stick with the winners-you guys!

    Laura

    Hi
    I'm sorry, but theres one
    Hi
    I'm sorry, but theres one or 5 in every crowd that knows it all! Better that shes blocked! We dont need anyones bull crap! We got enough of own to spread over many fields! LOL!
    Take care!
    hUGS!
    Renee
  • tufi000
    tufi000 Member Posts: 745 Member
    #11
    yeah Cinn
    I tried that site too and didn't stay for the same reasons. And it was really cliquish too. I always felt awful afterwards and they seemed more interested in drama than anything else. You got your buddies here and its good. Always glad to see you around.
  • butterflylvr
    butterflylvr Member Posts: 944
    #12
    tufi000 said:

    yeah Cinn
    I tried that site too and didn't stay for the same reasons. And it was really cliquish too. I always felt awful afterwards and they seemed more interested in drama than anything else. You got your buddies here and its good. Always glad to see you around.

    Wow... I only belong to one
    Wow... I only belong to one board and it's this one. I luckily hit the nail on the head the first time and didn't feel the need to join any others. I guess I got lucky the first time around and found you guys right away...

    Hugs Cinn,
    Lorrie
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #13
    wow...sorry...
    I too had
    wow...sorry...

    I too had DCIS/ lumpectomy and radiation and on tamoxifen (3 yrs now)

    some people say JUST DCIS...but to me I went through cancer/ surgery/treatments-mainly since it was caught so early..

    NO matter what we have to deal with a lot, as you know..

    Denise

    I never heard any #s, margins etc..just the basics what I needed to do..
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    #14
    Wow
    Where did this woman study oncology? No where I bet.
  • atiredparent
    atiredparent Member Posts: 45
    #15
    Sounds like jealousy. I say
    Sounds like jealousy. I say congratulations for taking care of yourself and finding your cancer early.
  • Pam5
    Pam5 Member Posts: 232
    #16
    atiredparent said:

    Sounds like jealousy. I say
    Sounds like jealousy. I say congratulations for taking care of yourself and finding your cancer early.

    I'm glad you blocked these
    I'm glad you blocked these people. I try only to surround myself with supportive, loving people. As said before, we all have enough to deal with without listening to a bunch of troublemakers. Keep yourself on the pink sister bus and know that we all will love you and support you whenever you need us.

    Hugs
    Pam

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