Recently diagnosed stage 1-3 may get the most benefit from walking therapy
Not much exercising being reported on the walking post, oh well thats life. I hope its being done anyway. I have have been exercising since diagnosis 3jun2010. Its just dawned on me that as most recurrances occur within the first couple of years, maybe thats the best time to commit to a walking program that delivers 27 mets a week.
The more recently diagnosed who are stage 1-3 have a unique window to improve their survival odds by 53% by having a walking program. See the walking post for all the details. You are warmly invited to join, its free.
Maybe if your stage 1-3 and 2-3 years down post surgery/chemo and your clear then maybe the benefit is not so great. For me I am committed to walk for the full 5 years if not longer, god willing I am still here.
Any comments about walking being more benefical to newly diagnosed ??
Comments
-
the silence in this post makes me sad
New crc's need to be walking, oh well, your life is in your hands.
goodluck you need it, I need it.
But a few lifestyle changes and you can stacks the odds in your favour.
I guess the good old usa's 75,000 annual deaths from crc won't be changing any time soon.
I have wasted enough time trying to warn some of the USA new crc's, I might spend that time
getting in the radio in my country. Time is precious, so is the window to save your own life.
The numbers in the usa are heart breaking. Spread the word umustwalk, especially if your recently diagnosed.
I feel you guys don't get it, maybe one day the oncologists will give the warning loud and clear.
if you want to understand my motivation, go visit a paliative care ward, my good friend is dieing in pain their from lung cancer. god bless him, god bless you, god bless us all.
hugs,
Pete
Ps you are invited to join the walking post0 -
Petepete43lost_at_sea said:the silence in this post makes me sad
New crc's need to be walking, oh well, your life is in your hands.
goodluck you need it, I need it.
But a few lifestyle changes and you can stacks the odds in your favour.
I guess the good old usa's 75,000 annual deaths from crc won't be changing any time soon.
I have wasted enough time trying to warn some of the USA new crc's, I might spend that time
getting in the radio in my country. Time is precious, so is the window to save your own life.
The numbers in the usa are heart breaking. Spread the word umustwalk, especially if your recently diagnosed.
I feel you guys don't get it, maybe one day the oncologists will give the warning loud and clear.
if you want to understand my motivation, go visit a paliative care ward, my good friend is dieing in pain their from lung cancer. god bless him, god bless you, god bless us all.
hugs,
Pete
Ps you are invited to join the walking post
Everyone's out walking!
Just because we're not screaming "Hu-Rah" and posting videos of us walking about doesn't mean we "don't get it".
Maybe we got it and are commented out?
(we ran out of running comments)
Gotta run...
-phil
;-)0 -
It's a good thing
Pete,
I understand that it's your passion, and that's great. I know that I should walk more or do other exercise, and sometimes I am good at that. Sometimes I am not. I'm just really busy lately with stuff going on at my church, so I don't have as much time to post or walk.
Please don't take it personally!
*hugs*
Gail0 -
I'm with Blakepete43lost_at_sea said:the silence in this post makes me sad
New crc's need to be walking, oh well, your life is in your hands.
goodluck you need it, I need it.
But a few lifestyle changes and you can stacks the odds in your favour.
I guess the good old usa's 75,000 annual deaths from crc won't be changing any time soon.
I have wasted enough time trying to warn some of the USA new crc's, I might spend that time
getting in the radio in my country. Time is precious, so is the window to save your own life.
The numbers in the usa are heart breaking. Spread the word umustwalk, especially if your recently diagnosed.
I feel you guys don't get it, maybe one day the oncologists will give the warning loud and clear.
if you want to understand my motivation, go visit a paliative care ward, my good friend is dieing in pain their from lung cancer. god bless him, god bless you, god bless us all.
hugs,
Pete
Ps you are invited to join the walking post
Could you back it up please, otherwise I'm giving up on walking the dog :-). I had my last treatment Dec 09, stage 3 10/11 lymph nodes infected.
Sonia0 -
phil i hope you are correctPhillieG said:Pete
Everyone's out walking!
Just because we're not screaming "Hu-Rah" and posting videos of us walking about doesn't mean we "don't get it".
Maybe we got it and are commented out?
(we ran out of running comments)
Gotta run...
-phil
;-)
its cool phil,
i live in hope that all the newly diagnosed stage1-3's will be walking.
i'll stop posting and can relax based on your statement.
if the onc's and surgeons are not telling ? then how do the newly diagnosed find out ?
are you really really sure everyones walking ?, the 4 x 40 minutes up hill a week over 5 years is a pretty big individual effort. it was a hard slog for me today.
i was looking for comments from newly diagnosed, none yet. oh well maybe one day.
hugs,
pete0 -
hi sonia i cannot back it upSonia32 said:I'm with Blake
Could you back it up please, otherwise I'm giving up on walking the dog :-). I had my last treatment Dec 09, stage 3 10/11 lymph nodes infected.
Sonia
recurrance rates are highest in the first couple of years, so i was raising the propisition that walking therapy should start straight after surgery at least and ideally straight after diagnosis.
your example is what i was suggesting, say you had been given the walking orders from your onc. great and you do it! great! you benefit from the 53%.
now your onc did not tell you, you did not walk, its 18 months into survalliance mode. you get the message about walking. how are your survival odds impacted? i don't know.
my gut feel is that if you are going to adopt a walking program, do it straight after diagnosis and don't stop for 6 years.
please keep walking the dog.
hugs,
pete0 -
its just recurrance highest first couple of yearsBuckwirth said:?
"Any comments about walking being more benefical to newly diagnosed ??"
Anything to back that up Pete? Every study I read just showed a benefit, I have not seen anything saying that the more recent the dx the greater the benefit...
so i guessed that the time to get walkings protective benefit. its not retrospective.
something about exercise changes the blood chemistry enough to seriously frustrate crc recurrence.
my point is about targetted walking therapy to newly diagnosed. no proof for stage 4, marginal benefit for stage 1-3 already ned for a couple of years huge benefit for newly diagnosed.
my comments are just a gut feeling.i figured it was logical based on recurrance statistics.
hugs,
pete0 -
thanks gailtootsie1 said:It's a good thing
Pete,
I understand that it's your passion, and that's great. I know that I should walk more or do other exercise, and sometimes I am good at that. Sometimes I am not. I'm just really busy lately with stuff going on at my church, so I don't have as much time to post or walk.
Please don't take it personally!
*hugs*
Gail
i am committed to not take it personally, not going to let all the preventable deaths get me down.
no pressure from me, we got on own lives and pressures.
i just regret all the crcs who don't understand about walkings benefits.
enjoying our lives is paramount enjoy church.
hugs,
pete0 -
Walking
I coudn't find walking post.
I walk 2.7 mile in 38 min and burn 290 cal every evening (I have an APP for that LOL). I do it because I like it. I did not know I 'needed' to. If it helps, amen, if it doesn't, I will get other benefits from walking.
Prayers to you.0 -
...I like topete43lost_at_sea said:hi sonia i cannot back it up
recurrance rates are highest in the first couple of years, so i was raising the propisition that walking therapy should start straight after surgery at least and ideally straight after diagnosis.
your example is what i was suggesting, say you had been given the walking orders from your onc. great and you do it! great! you benefit from the 53%.
now your onc did not tell you, you did not walk, its 18 months into survalliance mode. you get the message about walking. how are your survival odds impacted? i don't know.
my gut feel is that if you are going to adopt a walking program, do it straight after diagnosis and don't stop for 6 years.
please keep walking the dog.
hugs,
pete
...I like to walk..exercise...play...know what is benificial.
...I dont think you have a right to give a grim diagnosis for anyone. That is not supportive.
I was so very sick at diagnosis and could not have done what you propose. Nor at my radiation/chemo pump. Nor after my first surgery or very soon second. Then chemo was very hard on me and got harder when it was changed. I could barely walk out of CTC at times and wasnt able to get up for days. Then when I felt better...time for chemo.
We can only do what we can do. When we can do it.
I walk most of the 12 hours a day I am at work. Now.
Support is one thing. And we all know what comfort support is on this site.
Reminders are ok too.
But.....please......ease up. It's not making me feel better because all I could do was lay down for 1 year.0 -
I dont like feeling likepete43lost_at_sea said:its just recurrance highest first couple of years
so i guessed that the time to get walkings protective benefit. its not retrospective.
something about exercise changes the blood chemistry enough to seriously frustrate crc recurrence.
my point is about targetted walking therapy to newly diagnosed. no proof for stage 4, marginal benefit for stage 1-3 already ned for a couple of years huge benefit for newly diagnosed.
my comments are just a gut feeling.i figured it was logical based on recurrance statistics.
hugs,
pete
I dont like feeling like this is going down the same path as if your not married your survival rates are less.
Gut feelings and choice readings....
I am doing all I can do and this is turning into I am not doing enough.0 -
Petepete43lost_at_sea said:phil i hope you are correct
its cool phil,
i live in hope that all the newly diagnosed stage1-3's will be walking.
i'll stop posting and can relax based on your statement.
if the onc's and surgeons are not telling ? then how do the newly diagnosed find out ?
are you really really sure everyones walking ?, the 4 x 40 minutes up hill a week over 5 years is a pretty big individual effort. it was a hard slog for me today.
i was looking for comments from newly diagnosed, none yet. oh well maybe one day.
hugs,
pete
I have no idea what people are doing. They will do it (or not do it). Something simple like walking is a no brainer. So is not smoking yet millions of people do it because cancer won't happen to them or their Uncle Fester smoked for 75 years and he's OK. What are you gonna do? You're dealing with people.
I would think that many who are newly diagnosed are trying to figure out what protocol to follow, they may not be focusing on walking. I'm sure it would do them good but may be in panic mode or let's get a plan mode. Walking may come later.
I understand your passion for this but there are a hundred sayings I could insert here (but won't) You've told them, it's common sense, I've never met a doctor who didn't say to me "make sure you exercise".
I know I'm commented out on this topic.
-phil0 -
hey mark well done for walkingmarqimark said:Walking
I coudn't find walking post.
I walk 2.7 mile in 38 min and burn 290 cal every evening (I have an APP for that LOL). I do it because I like it. I did not know I 'needed' to. If it helps, amen, if it doesn't, I will get other benefits from walking.
Prayers to you.
its nice to hear that your walking.
i like walking also, but i do it passionately now because i want to live!!!!!!!!!!
us crc stage 1-3 get a 53% survival boost. your walking meets the threshold i think so
you have got a 53% survival boost and you did not even know. I hope that maskes you happy.
whats "needed" mean ?
all i did was raise the question that walking may be more important to recently diagnosed.
no real discussions on that point, alas.
if people read the science ?
then they can decide to walk or swim or whatever ?
do you feel any frustration that you were told this by me on the internet here and not by your onc ?
you see my big target is the onc and colorectal surgeons its simply their jobs to give good advice.
how can patients make informed decisions if they are not given alternatives ? simply you cannot offer informed consent if you are not advised. I feel its simple to demand higher standards across the board from our oncologists.
hugs,
pete
the walking post
http://csn.cancer.org/node/223799
I hope we are all members of the tail club.0 -
gail relax sorryplh4gail said:I dont like feeling like
I dont like feeling like this is going down the same path as if your not married your survival rates are less.
Gut feelings and choice readings....
I am doing all I can do and this is turning into I am not doing enough.
this post is for those newly diagnosed to research and consider what in this for them.
they can ask their onc and surgeons, or they can do nothing.
obviously i think we all should be walking to get 53%, health and time permitting.
i would like us all to survive and live long happy lives, so this post is targetting recently diagnosed so they could at least make an informed choice.
sorry this research is all over the net, forget it if it stresses you. its not my intention.
the fear of dieing is what makes me hit the treadmill when i don't feel like it, which has been the last few days. but the benefits of walking really exceed chemo in my case. do the maths for your own prognosis.
be happy, be at peace, sorry if this post has caused distress.
but i ask would you rather have found out about this in a years time. what if you walk, what if it prevents a recurrence.
i am not keen on joining the stage4 club, godbless them all, great company and all but not if i have a choice.
hugs,
pete
ps remember peace is the number a goal.0 -
dear gailplh4gail said:...I like to
...I like to walk..exercise...play...know what is benificial.
...I dont think you have a right to give a grim diagnosis for anyone. That is not supportive.
I was so very sick at diagnosis and could not have done what you propose. Nor at my radiation/chemo pump. Nor after my first surgery or very soon second. Then chemo was very hard on me and got harder when it was changed. I could barely walk out of CTC at times and wasnt able to get up for days. Then when I felt better...time for chemo.
We can only do what we can do. When we can do it.
I walk most of the 12 hours a day I am at work. Now.
Support is one thing. And we all know what comfort support is on this site.
Reminders are ok too.
But.....please......ease up. It's not making me feel better because all I could do was lay down for 1 year.
the 12 hours walking is great, you probably qualify for the 53% survival boost.
this is just a study with huge benefits for those well enough to walk.
of course rest and get well, if that takes a year so be it.
i was sick with an infection for about 2 weeks on reconnection, i could not even get out of bed. so i did not even think about walking. but i did think about all the supplements my naturopath and chine herbal oncologist had ready for me. to get me well enough to walk.
i did my walking, but it was from the bedroom to the bathroom for about 6 weeks.
i am blessed with energy and health now! I do not know for how long, I do have extreme sense of urgency about this issue for us crc's. that one else does that has posted here.
the issue is that your chemo treatment meant you were not able not walk. were you given the option to walk or chemo ? its between you and your onc.
i don't want to back off, I have given the message here. all the old timers know, I hope the facts. I wonder if they will start mentioning the research to the newbies.
As I mentioned I know my contribution here is not valued here, not one thank you post for
attempting to save a few crc's. my kids are waiting in bed for me to read to them, so I am out of here. yes I already stated I am easing up, and will start trying to save aussie lives.
the ball is the usa court, will you guys run with it?
I hope so, but I will not be holding my breathe. you only got 75000 crc deaths, don't you think walking and get 53% survival boost
makes compelling sense.
just forget I ever mentioned walking and this post, being relaxed is the key.
hugs,
pete0 -
its simple really phil "ITS NOT COMMONSENSE"PhillieG said:Pete
I have no idea what people are doing. They will do it (or not do it). Something simple like walking is a no brainer. So is not smoking yet millions of people do it because cancer won't happen to them or their Uncle Fester smoked for 75 years and he's OK. What are you gonna do? You're dealing with people.
I would think that many who are newly diagnosed are trying to figure out what protocol to follow, they may not be focusing on walking. I'm sure it would do them good but may be in panic mode or let's get a plan mode. Walking may come later.
I understand your passion for this but there are a hundred sayings I could insert here (but won't) You've told them, it's common sense, I've never met a doctor who didn't say to me "make sure you exercise".
I know I'm commented out on this topic.
-phil
dear phil,
I appreciate your comments. thanks.
the onc are not advising new crc's of walkings benefits, no disclosure.
no talks of folfox for 5%-20% survival boost or 53% for walking.
what about side effects oh yeah walking got blisters, you could get bitten by a dog.
folfox these numb fingers and feet, oh thats my imagination. some have got heart, liver damage that permanent and life threatening.
you got 3257 posts, is my effort here wasted?
would you or any senior member on this board mention the walking therapy to a newbie ?
the general doctor exercise message has no traction.
the onc should say now if you want to live here is a prescription for 5 years walking starting now. you can joke about everyone walking.
I am doing my best to save lives? I am not sure whats behind your statement "everyone's walking" when I guess they are not. the lack of support here makes me sad, this is why we have so many deaths, are we really
helping each other here to survive. or are we a sympathy club.
you mentioned walking may come later, but by that time the crc's hatched and they are in the stage4 club.
I too am commented out on this....
even csn and bowel cancer australia won't put a warning.
hugs,
pete0 -
I am new, I was dx marchpete43lost_at_sea said:hey mark well done for walking
its nice to hear that your walking.
i like walking also, but i do it passionately now because i want to live!!!!!!!!!!
us crc stage 1-3 get a 53% survival boost. your walking meets the threshold i think so
you have got a 53% survival boost and you did not even know. I hope that maskes you happy.
whats "needed" mean ?
all i did was raise the question that walking may be more important to recently diagnosed.
no real discussions on that point, alas.
if people read the science ?
then they can decide to walk or swim or whatever ?
do you feel any frustration that you were told this by me on the internet here and not by your onc ?
you see my big target is the onc and colorectal surgeons its simply their jobs to give good advice.
how can patients make informed decisions if they are not given alternatives ? simply you cannot offer informed consent if you are not advised. I feel its simple to demand higher standards across the board from our oncologists.
hugs,
pete
the walking post
http://csn.cancer.org/node/223799
I hope we are all members of the tail club.
I am new, I was dx march 2011. I DO believe in walking not over doing it, just moderately. Advice from my naturopath. Swimming walking does keep one healthy, if it will keep the cancer at bay....? Who knows. If it works for me, like right now, great. A friend of mine walked out the hospital given three months to live, now 3 years later he still walks and is Ned, something must be right when walking. He is back to work on the pipelines.
I do believe in walking of any activity that gets us going and not in bed or on the couch.
hugs, Marjan0 -
Pete - It's common sensepete43lost_at_sea said:its simple really phil "ITS NOT COMMONSENSE"
dear phil,
I appreciate your comments. thanks.
the onc are not advising new crc's of walkings benefits, no disclosure.
no talks of folfox for 5%-20% survival boost or 53% for walking.
what about side effects oh yeah walking got blisters, you could get bitten by a dog.
folfox these numb fingers and feet, oh thats my imagination. some have got heart, liver damage that permanent and life threatening.
you got 3257 posts, is my effort here wasted?
would you or any senior member on this board mention the walking therapy to a newbie ?
the general doctor exercise message has no traction.
the onc should say now if you want to live here is a prescription for 5 years walking starting now. you can joke about everyone walking.
I am doing my best to save lives? I am not sure whats behind your statement "everyone's walking" when I guess they are not. the lack of support here makes me sad, this is why we have so many deaths, are we really
helping each other here to survive. or are we a sympathy club.
you mentioned walking may come later, but by that time the crc's hatched and they are in the stage4 club.
I too am commented out on this....
even csn and bowel cancer australia won't put a warning.
hugs,
pete
It's just that common sense is not so common...
You're free to do whatever you want to do, feel however you want to feel,
and say whatever you want to say.
I'm done with reading about the walking posts, that's all I'm saying.
I hope others read and get out and do it.
To me it's sort of like not going under a tree during a lightning storm.
it starts to rain and where do many people go??? Under a tree.
What happens,??? They get stuck by lightening.
Some people don't get it, I get it.
All the best...
-phil
;-)0 -
thanks marjanthingy45 said:I am new, I was dx march
I am new, I was dx march 2011. I DO believe in walking not over doing it, just moderately. Advice from my naturopath. Swimming walking does keep one healthy, if it will keep the cancer at bay....? Who knows. If it works for me, like right now, great. A friend of mine walked out the hospital given three months to live, now 3 years later he still walks and is Ned, something must be right when walking. He is back to work on the pipelines.
I do believe in walking of any activity that gets us going and not in bed or on the couch.
hugs, Marjan
thats great news about your friend.
the science backs up walking, just aim to get a little healthier, a little faster each day.
some moral support from you i appreciate sincerely, be clear about the science its not arguable. walking saves lives, the tragedy is so many don't get the message.
ask yourself why your naturopath asked you and not your onc ?
but thats really a question the class action lawyers will be asking many many patients really soon.
hugs,
pete0
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