- Search CSN:
- Members: Login to search all areas
- Not a member? Click here to search public areas
recurrence....what to do next???
|
|
Aug 12, 2011 - 11:14 am
My husband has just been told that his tumor is growing after he has been stable for 9 months after surgery (did not remove much), radiation and temodar, and 5 day temodar every three weeks. He has been active and doing fairly well. Now his doctor is recommending switching to avastin. I would like to hear of other's experiences on this drug. I am also wondering what anyone knows about the clinical trials of medi-575. He may be eligible for this but we have to explore it and decide....this is the stuff that feels overwhelming...would love some help... |
Joined: Aug 2009
My husband was treated swith avastin for a GBM. Initial results were good, shrank the tumor significantly. Unfortunately the tumor found its way around the drug and started to grow again. One of the side effects was hemorrages. He did have two severe nose bleeds, one which resulted in a ER trip to get under control. Overall, he did tolerate the avastin well while he was on it.
Joined: May 2010
Hi there, my daughter has been on Avastin since October 2010. She has tolerated it very well. We have recently decided to stop the Avastin and the other chemos. Her doctor has told us that the Avastin is not a cure for brain cancer but it does hold the tumor at bay for awhile. I have heard good things and bad things about Avastin, but ALL medicines have good and bad things about them. Her 1st Avastin treatment took 1 1/2 hours to administer, they started off slow to make sure that she didn't have any kind of reaction. After that, each treatment took 1/2 hour. She did take a high dose of Zofran before each treatment just in case. Good luck, I know decisions like this are very hard. Go with your heart.