- Search CSN:
- Members: Login to search all areas
- Not a member? Click here to search public areas
Dad's HCC reoccurred after a transplant
|
|
Aug 08, 2011 - 5:10 am
Hi everyone, My Dad (55) was diagnosed with HCC w/ cirrhosis in March 2010 and we had the transplant done in April 2010. I (26 male) was the donor. They took my entire right lobe and removed all of his liver. Everything went great and we both recovered well, especially him. He has had routine check-ups and tests done ever since. Unfortunately, he started experiencing pain in his back in July 2011 and it has been confirmed that the HCC has reoccurred with mets to the lungs and bone (destruction of ribs). The doctor has prescribed Nexavar and said that there is no other alternative. He also said that it won't cure him but simply prolong the inevitable. He gave him 6 months to a year. I am really scared and sad. I feel so inept for not being able to do anything else for him. He is weak from the meds and never leaves his bed. What do I have to look forward to? Is there anything else I can do? Is there anyone with a similar prognosis who defied the stats? Sonny |
Joined: Mar 2011
Sonny,
I am so sorry to hear about your Dad. I can understand what you are going through, my Mother had bile duct cancer. She had surgery and treatments and was doing well, then was burned internally from the radiation and bounced back from that surgery...only for the doctors to tell us they found a spot on her liver one month after the radiation surgery. I was so devastated...and still am everyday of my life. I lost my Mother on Father's day of last year. She was my everything! I'm lost and wonder why her everyday? Why did her life have to be taken away from her and me and my family after all she went through to beat this?
I want to tell you that you have already done so much for your father and it will never be enough to a child. For you to risk your life and give him the right lobe of your liver was the most giving, loving and most courageous thing you could do for him. You're father raised an AMAZING child!! Always, ALWAYS know that...I can only imagine how much your father appreciates all you've done to show how much you love him and what you were willing to go through to help him! The best thing you can do is, what you've been doing, be there for him day and night...a friend of mine has told me about a procedure called TACE, ask his doctor if he is a candidate. Your father has been through so much and so have you. If the doctor feels its not best for your father, make this time all about quality...make each day the BEST!! I'm sure its hard with him not feeling up to getting out of bed but talk with him about everything and anything, don't let any words go left unsaid...bring him his favorite things, play cards, watch your favorite shows...my Mom and I loved to watch the cooking shows together. Take one day at a time. You will both be in my thoughts.
My heart goes out to you and your father.
Angel