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3 days in hospital

sandysp's picture
sandysp
Posts: 852
Joined: May 2011

Hi - I finally escaped from being in the hospital three days. It started with just my counts being low and getting a transfusion, but my blood pressure dropped really low and I got fluid around my heart and lungs and had to be admitted. This is where everything went really bad for me. They had to handle the meds of course and they were late or forgot them or whatever. The hospital is not Sloan it's just a community hospital that was having a very poor med service problem. To make matters worse, I needed a stool softener and desperately needed a sitz bath. I had such a bad time with pain management gone badly out of control and unbelievably painful bowel movements. Finally my doctor was able to explain that the pain meds needed to be given to me whether I complained of pain being a 2 or a 10 or nothing. And got assigned a very good and understanding nurse. But it was very a very difficult time for me. I am so glad to be home.

The good news is that my platelets have come up on their own by quite a bit and it looks like I can finish my treatments this week. Week six with chemo and radiation begins tomorrow. I feel ready although I still have some fluid retention issues.

One other minor pain management issue is that I am am sensitive to Sulfa drugs and that medication they normally use at this time of the tissue breaking down, etc. is a sulfa product. Sloan has been really terrific though and gave me some RadiaDres Gel Sheets which are terrific but hard to keep on. I hate to think how much they must cost.

If anyone else has had this problem and has any ideas, let me know.

So glad to have all of you. Thank you for all your encouragement and information so far.

RoseC's picture
RoseC
Posts: 513
Joined: Jun 2011

I'm so sorry you had such a bad time. Actually, I was just wondering yesterday 'gee, Sandy hasn't posted for a while - hope everything is ok'. So glad to hear you're home and feeling better.

About the RadiaDres gel sheets - yes, I can see why they'd be hard to keep on. I Googled RadiaDres and found that the gel comes in a tube form as well as sheets - maybe that would work better? Maybe you could ask about it tomorrow when you go in for radiation? It's called Medline RadiaGel Hydrogel. Here's a website, for info:

http://www.woundsupplyonline.com/RadiaGel-p/radiagel.htm

Says you can wear it during radiation treatments, but your doctor would know best about that.

Stay well!

mp327's picture
mp327
Posts: 3119
Joined: Jan 2010

I am sorry you have been dealing with so many issues, but I hope things are better now and that you will get in those last few radiation treatments and have this done! I know you are anxious to get to the healing phase, and it will happen quicker than you can imagine right now! So hang in there. You're in my thoughts and prayers.

Angela_K
Posts: 374
Joined: Jan 2011

I've been off the site for quite a while. First, let me say I love, love, LOVE your profile picture. You are beautiful inside and out.

I'm sorry that you've been through so much, Sandy. Soon it will be over and the healing can begin!!! It seems like just yesterday that you joined this board and you're now just 5 'blasts' away from being DONE!

Know that I am thinking of you and praying for you as this part of the journey comes to a close.

love, Angela

z's picture
z
Posts: 1273
Joined: May 2009

I am so sorry for the trouble you have had. I am so glad your home and able to finish your treatment. I hope that it will go by quickly so you may start the healing process. Lori

nonichol's picture
nonichol
Posts: 114
Joined: Jul 2010

Wow, you have been through a lot. I hope you have a speedy recovery. I completed treatment 8-26-10 and still remember the painful bm's. Can't even describe it.
Hang in there!
Norma

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