Jul 30, 2011 - 9:18 am
I have a primary tumor and cirrhosis, have had two CE treatments, and have recently been placed on the transplant waiting list. My blood type is B, so the list is not that long (but of course the donor population is not that large). My transplant team(Thomas Jefferson University Hospital in Philadelphia) put me in touch with a recent recipient, and I found it to be very helpful. However, his experience almost sounded too rosy. I'm looking for feedback from recipients about the "not so great" parts of their experience, so that I can get a more complete picture of what I might expect. Also, is it likely that I will have to become very ill before getting to the top of the list. With the shortage of donors, it would seem that relatively healthy people (like me - at least for now) won't get to the top until the situation becomes dire. My meld score is currently 22, and I don't expect any phone calls for at least 9 months, but I've been told that I've probably got 12-18 months to live without a transplant. Anyone out there who has gone down a similar track? Thanks for your feedback!!