Jul 27, 2011 - 8:19 pm
Hello to all of the brave women on this network. My mother was just diagnosed with PPC at stage 3c. She just had surgery (hysterectomy, and omenectomy) and will be seeing an oncologist. At first her symptoms were vague. In June 2010, She had a hx of a simple ovarian cyst seen by ultrasound,which was followed up after 4 mo. In Feb. 2011 she presented to the ER with a very strong pain in her upper right abdomen. She had gallbladder surgery 2 months later, and after that, her problems started. She had severe ascites (selling of abdomen), trouble breathing,and lower abdominal pressure. I took her to the ER and a CT scan revealed 2 pelvic masses. Ultrasound later revealed a 3rd mass, and the others appeared Ovarian. Her CA 125 measured 1250 (very high) for Ovarian Ca. We were referred to UCLA and saw an amazing GYN/Oncologist. My mother is just beginning this journey. Your stories bring us hope, although we know it is difficult to deal with. She is an amazing woman with a zest for life! I am wondering if other "daughters" were told of this being genetic, and the possible risks. If yes, what tests have been done? (I recently learned that my 1st cousin, my mom's' sister's daughter is battling PPC, and her younger sister passed away probably due to this also, but was not diagnosed in time.)Any information is welcome. Good luck to all.