Jul 23, 2011 - 11:42 am
Even though I post a lot on the ovarian cancer board, I thought I would post my update here as there seem to be more people who share my situation on this board. The situation is where you watch your elevated CA-125 without going on chemo right away.
Basically, my MRI looks stable without lymph node involvement (no progression of visible disease since 3/11) and my CA-125 is sitting around 100. I've decided to see how long I can live with this condition before getting back on the chemo train as I have peritoneal cancer in addition to the ovarian cancer.
I am starting on new non-traditional treatments to prevent metastasis and slow progression of the disease. These are in addition to the 50 Gm vitamin C IVs that I have been doing twice/week for the past 10 months. The first new treatment is "low dose naltrexone" (prescription) which works to increase endorphins (www.lowdosenaltrexone.com). This treatment has greatly helped me sustain a positive attitude and decreased anxiety overall.
The second treatment is modified citrus pectin (MCP) which somehow coats the malignant cells and help the immune system recognize them. Here's something from the American Cancer Society web site:
These studies appear to show that MCP makes it difficult for cancer cells that break off from the main tumor to join together and grow in other organs. However, in most animal studies, MCP had no effect on the main tumor, suggesting that it may only be useful for preventing or slowing the growth of metastatic tumors in very early stages of development.
Recent laboratory studies of human and animal cells have provided information on how MCP might slow the spread of cancer. MCP appears to attach to galectin-3, a common chemical in many cells. Galectin-3 is present in abnormally high levels in many cancers and plays an important role in the growth, survival, and spread of cancer cells.
American Cancer Society and Citrus Pectin
Also check out: http://en.wikipedia.org/wiki/Modified_citrus_pectin
The final treatment is bindweed (aka VascuStatin) which has antiangiogenesis effects.
I feel great and figure that I can live with a little cancer in my belly as long as it doesn't decide to migrate into other tissues. So far, I have no ascites so I guess my decision to return to chemo will be based on my ability to keep the cancer from metastasizing further.
Will keep you posted on my progress or lack thereof.