Jul 18, 2011 - 7:32 pm
Interested in communicating with others with similar problem. I am presently taking 40mg Octreotide monthly. Started about 18 months ago. It stopped the facial flushing but never had the diarrhea that many others have. Feel very lethargic and run out of steam when getting up after sitting or driving for a while. Condition improves if stay on feet, but deteriorates when climbing stairs or carrying anything. Blood pressure has been elevated for about a year so was on 2 B/P medications. Strangely B/P has reduced so I have, for now at least, discontinued them. I have put myself on a strong fruit diet particularly alot of blueberries and red grapes. I've cut out red meats for the most part. Eat much more fish than before. The rest is chicken and pasta, American cheese and raisin or whole wheat bread and also alot of cottege cheese.I also do oatmeal when I can. Doctor says my cholesterol is that of a 20 year old. I replied I wish everything else was that good. I'm 79. Since taking Pravistatin my cholesterol level has significantly gone down. Appetite has diminished over past 3 weeks and have lost about 8 pounds. This has coincided with reduction in B/P. I am looking into freeze dried BLACK rasberries which google indicates are helpful for my condition. They appear to be expensive. Anyone out there have a good source?
Hope to hear from you, REW