Jul 07, 2011 - 3:43 pm
I posted this, originally, in the lymphona discussion board - I guess I should have posted it here:
Hello all. I'm new here. Just wanted to give you a brief introduction and am hoping to receive some support and information from those of you (patients and caregivers) who have also been battling with lymphoma.
My b13 year old son, Kiefer, was diagnosed with Burkitts NHL about a month ago. What we thought was tonsilitis or strep throat, turned out to be cancer, to everybody's shock. When the word cancer left the physician's mouth, it was like I just left my body. I couldn't breathe, I couldn't think, I couldn't speak... we thought we were going to have to have Kiefer go through a tonselectomy, but nobody in their wildest dreams thought that the doctor would be telling us our 13 year old son had cancer! For the first week I don't think I've ever felt fear like that - I've never cried so hard in my life. All I could think about is the worst case scenario - I could lose my boy!
Since then everything has moved pretty fast. He has had his PET scan, which turned out to be negative (Thank God!) his blood work came back negative. He goes into surgery tomorrow to have his portacath implanted and while he is asleep, they will conduct a bone marrow aspiration and a lumbar puncture. He begins chemo on Tuesday. I have been so busy taking him to appointments, picking up prescriptions, calling doctors, etc. I no longer have time to sit and dwell on all of the worst-case scenarios, but I really don't know what to expect. Oh - I know what the pamphletts, websites, and brochures tell me to expect - but have not been through this personally, and certainly my son has not been through this, so I'm just kind of holding my nose and hoping that I do the best I can for my son.
I will read through some of these posts, but I would certainly appreciate any feedback or suggestions you have to assist me in being as supportive and effective caregiver I can be for my son.