Good news!!!!!!!!!!!!! ( Mjfromtx..here's the info)

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MAJW
MAJW Member Posts: 2,510 Member
in Breast Cancer #1
Yeah yeah yeah! Okay....lol. Yesterday was day 10 from the day I took the clinical trial drug TESETAXEL for my recurrence of TN bc..On Thursday when I woke up, I, as usual, touched the "lump" above my clavicle..hmmmm I thought...this sucker seems smaller...nah I thought, just wishful thinking...but I looked in the mirror and it looked smaller...husband said the same thing....had to have labs and quick appointment with oncology PA and my clinical trial nurse...after they said my lab work was perfect, no low white count, etc...I mentioned to this PA that the lump felt smaller to me...she looked at the measurements and drawings my oncologist had done and said.....well he has it the size of a lime...it certainly doesn't feel that big to me! They went to get my oncologist...he came in, felt it, repeatedly, grinned from ear to ear and said.....IT IS INDEED SMALLER! From a lime size to cherry size .....in just 10 days and just one cycle!!!!! Do I need to say I am floating?

Mjfromtx..you asked about this clinical trial....This drug is in phase II and is in conjunction with Sloan Kettering in NY...I am NOT in NY...my local cancer center was "invited" to participate...The company that has developed the drug is GENTA. Again the drug is TESETAXEL..you can goggle it...by company or drug....it pops right up! It will give you the info about the drug, addresses, etc....I do know they are taking at this time 25 women with metastatic bc.. There are 21 of us right now...there is one other patient at my cancer center that is in this....her tumors shrunk by 50% after two cycles.......From what I understand, it is ready to go to phase III which is a good thing...

I would suggest involving your oncologist in finding out more about this....I did have to qualify, test after test after test.....the qualifications can be found when you google it....

So, my pink sisters, this ole gal is having my own happy fireworks !!!!!!!!!

I wish you the best and...
Hugs to all, Nancy
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Comments

  • grams2jc
    grams2jc Member Posts: 756
    #2
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    No words for how great that news is!
    That is so encouraging and simply fantastic.

    Enjoy those fireworks!

    Jennifer
  • butterflylvr
    butterflylvr Member Posts: 944
    #3
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    grams2jc said:

    No words for how great that news is!
    That is so encouraging and simply fantastic.

    Enjoy those fireworks!

    Jennifer

    Tears of joy are cluttering
    Tears of joy are cluttering my eyes at this moment.... I can be such an emotional sap at times I tell you, this is such great news Nancy. Wow and only after one treatment, I am speechless. How many treatments are they making you do? After a couple more that baby should disappear..

    I don't think I have to tell you to have a wonderful holiday weekend, I still can't believe it, that is so awesome. Woohoo....

    Hugs,
    Lorrie
  • jamiegww
    jamiegww Member Posts: 384
    #4
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    butterflylvr said:

    Tears of joy are cluttering
    Tears of joy are cluttering my eyes at this moment.... I can be such an emotional sap at times I tell you, this is such great news Nancy. Wow and only after one treatment, I am speechless. How many treatments are they making you do? After a couple more that baby should disappear..

    I don't think I have to tell you to have a wonderful holiday weekend, I still can't believe it, that is so awesome. Woohoo....

    Hugs,
    Lorrie

    I too have tears of joy.
    I am so happy for you! Thank you for this fantastic news and thank you for participating in the clinical trial.
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    #5
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    GREAT news!
    Hi Nancy -- I was happy to read your post. This is fantastic. We pray that this "SUCKA" continues to shrink, and goes away super soon.

    I am getting treated at Sloan now and I always wonder what kinds of research they are doing on treatments. I am getting the AC/T, my last taxol coming up. I wonder if they can come up with a pill for ER+? I don't know how many treatments there are for bc, but it's always great news when someone like you states it's working!!!! I am so happy for you. And please keep us posted, always.

    Enjoy your long holiday weekend! (with a big smile) :)
  • missrenee
    missrenee Member Posts: 2,136 Member
    #6
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    LoveBabyJesus said:

    GREAT news!
    Hi Nancy -- I was happy to read your post. This is fantastic. We pray that this "SUCKA" continues to shrink, and goes away super soon.

    I am getting treated at Sloan now and I always wonder what kinds of research they are doing on treatments. I am getting the AC/T, my last taxol coming up. I wonder if they can come up with a pill for ER+? I don't know how many treatments there are for bc, but it's always great news when someone like you states it's working!!!! I am so happy for you. And please keep us posted, always.

    Enjoy your long holiday weekend! (with a big smile) :)

    Oh, Nancy--we share your joy!
    We love, love, love hearing these wonderful reports. Next time you post--I want to hear "size of a pea"!!!!

    Rejoice and enjoy your weekend!

    Hugs, Renee
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #7
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    Thank you so much for
    Thank you so much for sharing your unbelievable news. You give us all hope. Love you, love you!!! And I am continuing to send positive energy and happy thoughts your way. Yippee!
  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    #8
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    Yippee!!! I am grinning from
    Yippee!!! I am grinning from ear to ear! Such fantastic news, thanks for sharing your good news with us.
    XOXO
    Ines
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #9
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    That is indeed wonderful
    That is indeed wonderful news!! Thank you for sharing.

    Happy hugs,

    Linda
  • aisling8
    aisling8 Member Posts: 1,627 Member
    #10
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    Gabe N Abby Mom said:

    That is indeed wonderful
    That is indeed wonderful news!! Thank you for sharing.

    Happy hugs,

    Linda

    You made my weekend
    And I have a great weekend planned -- lots of family!!!! But this, this feels like now I can exhale.

    So glad you let us know!

    xoxo
    Victoria
  • fauxma
    fauxma Member Posts: 3,577 Member
    #11
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    aisling8 said:

    You made my weekend
    And I have a great weekend planned -- lots of family!!!! But this, this feels like now I can exhale.

    So glad you let us know!

    xoxo
    Victoria

    Happy, happy news indeed.
    Happy, happy news indeed. This is just so great. Thanks for sharing all the info with all of us. Not everyone knows about clinical trials and this will allow many of our ladies to talk with their doctors about the possibility of using this as well for their stage IV. It is one more potential weapon in the fight against cancer and sounds very promising.
    Stef
  • GreeneyedGirl
    GreeneyedGirl Member Posts: 1,077
    #12
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    fauxma said:

    Happy, happy news indeed.
    Happy, happy news indeed. This is just so great. Thanks for sharing all the info with all of us. Not everyone knows about clinical trials and this will allow many of our ladies to talk with their doctors about the possibility of using this as well for their stage IV. It is one more potential weapon in the fight against cancer and sounds very promising.
    Stef

    ~Limes to cherries~ Yay!
    How thrilling Nancy!! we rejoice in the shrinkage and celebrate the good outcome so far of this new drug. You are a brave fighter!!
    ~Melanie
  • New Flower
    New Flower Member Posts: 4,294
    #13
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    fauxma said:

    Happy, happy news indeed.
    Happy, happy news indeed. This is just so great. Thanks for sharing all the info with all of us. Not everyone knows about clinical trials and this will allow many of our ladies to talk with their doctors about the possibility of using this as well for their stage IV. It is one more potential weapon in the fight against cancer and sounds very promising.
    Stef

    Good news
    Nancy,
    I am really happy about your good news, having indication that new Chemo is working is very encouraging. Thank you for sharing and taking part in this trial.
    Sending positive thoughts for continuing improvement.
    HUgs,
    New Flower
  • renee616
    renee616 Member Posts: 181
    #14
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    New Flower said:

    Good news
    Nancy,
    I am really happy about your good news, having indication that new Chemo is working is very encouraging. Thank you for sharing and taking part in this trial.
    Sending positive thoughts for continuing improvement.
    HUgs,
    New Flower

    I'm so happy you got encouraging news!!!!!
    I'm happy for you and pray it will continue to shrink away to nothing! YAY! Have a joyous weekend!!!
    Renee
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    #15
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    Nancy, I echo all the joy
    Nancy, I echo all the joy and "atta-girl" remarks as my other pink sisters. It truly is promising and I am on the sidelines hoping for total shrinkage. Thanks for taking part in this trial. I can't wait to read that the tumor is nowhere to be found. Keep up your positiveness and know we are right here to cheer you on. Now, go enjoy your happy fireworks!!
  • RozHopkins
    RozHopkins Member Posts: 578 Member
    #16
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    majw
    Brilliant. Lets hope this is a good option for lots of us. Good luck. Roz
  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    #17
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    RozHopkins said:

    majw
    Brilliant. Lets hope this is a good option for lots of us. Good luck. Roz

    Now THIS is what we need!
    Nancy, I'm elated for you and angry at the same time, because THIS is the kind of treatment we've been needing for so long! A lime to a cherry -- the best fruit salad ever!

    WHY has it taken so long to come up with a drug that can do this?!? That makes me angry, but I'm ever so grateful that it's come around in time to give you a very happy holiday weekend!

    I shall have some fruit salad on the 4th, in your honor! :-)

    Traci
  • Lynn Smith
    Lynn Smith Member Posts: 1,264 Member
    #18
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    TraciInLA said:

    Now THIS is what we need!
    Nancy, I'm elated for you and angry at the same time, because THIS is the kind of treatment we've been needing for so long! A lime to a cherry -- the best fruit salad ever!

    WHY has it taken so long to come up with a drug that can do this?!? That makes me angry, but I'm ever so grateful that it's come around in time to give you a very happy holiday weekend!

    I shall have some fruit salad on the 4th, in your honor! :-)

    Traci

    Amazing
    What amazing news you got.You have more to celebrate than the 4th of July. I feel like Traci what took so long.I am sure many other lives could have been saved with what you are experiencing.All in just a few short days. YEAH!!!

    AWESOME news.I feel I need to write some of these new things down to keep my doctors up on things.Make suggestions if I come across any problems.I'm sure they know but just want to mention things that might work better.

    Two different hospitals in my area are building 2 huge cancer centers.Awesome having centers treating only cancer patients and being so close to me.Both will be finished within 2 years.


    Lynn Smith
  • sea60
    sea60 Member Posts: 2,613
    #19
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    Lynn Smith said:

    Amazing
    What amazing news you got.You have more to celebrate than the 4th of July. I feel like Traci what took so long.I am sure many other lives could have been saved with what you are experiencing.All in just a few short days. YEAH!!!

    AWESOME news.I feel I need to write some of these new things down to keep my doctors up on things.Make suggestions if I come across any problems.I'm sure they know but just want to mention things that might work better.

    Two different hospitals in my area are building 2 huge cancer centers.Awesome having centers treating only cancer patients and being so close to me.Both will be finished within 2 years.


    Lynn Smith

    Agree with Traci!
    Love to hear them start to put out drugs that work!

    Awesome news!

    Hugs,

    Sylvia
  • CAchick
    CAchick Member Posts: 277
    #20
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    Happy, happy! Joy, joy!
    I am SO happy for you!! Rockin it!
    YEAH!!!
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #21
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    CAchick said:

    Happy, happy! Joy, joy!
    I am SO happy for you!! Rockin it!
    YEAH!!!

    Oh, How wonderful!
    I'm so happy for you and for all the women with breast cancer. This sounds like a major major breakthrough.

    Now, really Traci, fruit salad? How about a margarita with a cherry on top?

    Suzanne

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