Jun 29, 2011 - 8:37 am
Hi all: I am collecting, to have on hand for my oncologist (who is an amazingly intelligent man), the various treatments that folks with peritoneal cancer are getting or have had. I am interested in both primary and secondary peritoneal cancer treatments including surgery and various chemotherapy regimes. For example, I have not been approved for the peritoneum surgery/HIPEC. My chemotherapy started with cisplatin/gemcitibine at first but is now FOLFOXFIRI (oxaliplatin/irenotecan/5FU/leucovin) administered every 2nd week. I wear the 5FU pump for 42 hrs just after regular chemotherapy. My original cancer was gallbladder cancer that spread to the liver (surgery took out the gallbladder, its tumour, and part of the liver). Now it is secondary peritoneal cancer - I have about 6 nodules several mm in size. Because of the liver I can't have radiation.
I'd also like to know what side effects you have had and how you have managed them. For example, I manage the oxaliplatin neuropathy with L-Glutamine, Vit B6, and calcium/magnesium and have had few problems since the first disastrous treatment. For the serious diarrhea resulting from the irenotecan, I take lomotil and follow the BRAT diet. For the sweats associated with the irenotecan, I have an injection during chemo but hasn't done much. I don't have nausea. For mouth sores I have held them at bay with a rinse of club soda (or baking soda and salt).
Can you help me compile this list? There are so few cases of this cancer (except associated with ovarian cancer) here in Canada, it is an unknown field. Thanks!